Transverse Myelitis Internet Club List: [TMIC] Re: pain from SCI

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I sent the following to a resident neurosurgeon who said he would =
try to answer some questions if we needed. He is a busy man and said he =
tries to check his email about 3 times a week. I do not want to bombard =
him, so if we have a real puzzler, let me know and I will send it to =
him.
John
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I sent him the following and his response is at the end
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=20
Doc,
I need your opinion. Someone found this re: Pain From SCI.
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PAIN FROM SPINAL CORD INJURY
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The Massachusetts General Hospital is conducting a research=20
project to evaluate experimental drugs as a treatment for=20
specific types of pain caused by spinal cord injury (SCI). =20
Individuals between the ages of 18 and 79 with SCI who have had=20
persistent pain for a minimum of 3 months following SCI may be=20
eligible.
For more information, please contact Victoria, Lairs, or Dr.=20
Sang at 617-724-0330 or e-mail at:=20
vmiller(AT)etherdome.mgh.harvard.edu
=20
=20
=20
Gunny(who has TM) wrote this, "What's wrong with us in this =
picture?" after receiving the following response:
=20
Thank you for responding to my posting on the Internet about =
research we
are doing on medications for pain from spinal cord injury. However,
individuals whose pain is a result of transverse myelitis are not =
eligible
for the study.
=20
Again, thank you for your response, and I wish you the best of luck.
=20
Sincerely,
Victoria Miller, Study Coordinator
=20
Gunny wrote this, "This may answer a few questions, especially the =
first sentence. You may want to print this and show it to your Doctors." =
after sending another question.
=20
Yes, TM can be caused by trauma, although it can also be present in =
the
absence of trauma. Thus, to keep the study group as homogeneous as
possible, we decided not to include those patients with TM. =
However, we
may have future studies for which you may qualify.
Please e-mail me your phone number, and I can contact you when we =
have more
details.
=20
Sincerely,
Victoria Miller, Study Coordinator
=20
In your opinion, is TM a SCI in medical terms? I know that they have =
their definition and I know that they have already set their criteria, =
but we are curious.
=20
Thank you,
John
=20
=20
=20
=20
=20
Dear John
It sounds like they are looking for people with sci due to external =
forces. Since those with tm may have other factors involved (ie =
viruses), they don't want to confuse the picture if the results are =
positive or negative.=20

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I sent the following to a resident = neurosurgeon=20 who said he would try to answer some questions if we needed. He is a = busy=20 man and said he tries to check his email about 3 times a week. I do = not want=20 to bombard him, so if we have a real puzzler, let me know and I will = send it=20 to him.

John

I sent him the following and his = response is at=20 the end

Doc,

I need your opinion. Someone found = this re:=20 Pain From SCI.

PAIN FROM SPINAL CORD INJURY

The Massachusetts General = Hospital=20 is conducting a research
project to evaluate experimental drugs = as a=20 treatment for
specific types of pain caused by spinal cord = injury=20 (SCI).
Individuals between the ages of 18 and 79 with SCI = who have=20 had
persistent pain for a minimum of 3 months following SCI may = be=20
eligible.
For more information, please contact Victoria, = Lairs, or=20 Dr.
Sang at 617-724-0330 or e-mail at:
vmiller(AT)etherdome.mgh.h= arvard.edu

Gunny(who has TM) = wrote this,=20 "What's wrong with us = in this=20 picture?" after receiving the following = response:

Thank you for responding to my posting on the Internet about = research=20 we
are doing on medications for pain from spinal cord injury.=20 However,
individuals whose pain is a result of transverse = myelitis are=20 not eligible
for the study.

Again, thank you for your = response,=20 and I wish you the best of luck.

Sincerely,
Victoria = Miller, Study=20 Coordinator

Gunny wrote this, "This may answer a few = questions,=20 especially the first sentence. You may want to print this and show = it to=20 your Doctors." after sending another question.

Yes, TM can be caused by trauma, although it can also be = present in=20 the
absence of trauma. Thus, to keep the study group as = homogeneous=20 as
possible, we decided not to include those patients with = TM. =20 However, we
may have future studies for which you may = qualify.
Please=20 e-mail me your phone number, and I can contact you when we have=20 more
details.

Sincerely,
Victoria Miller, Study=20 Coordinator

In your opinion, is TM a SCI in medical terms? I know = that they=20 have their definition and I know that they have already set their = criteria,=20 but we are curious.

Thank you,

John

Dear John

It sounds like they are looking for people = with sci=20 due to external forces. Since those with tm may have other = factors=20 involved (ie viruses), they don't want to confuse the picture if the = results=20 are positive or negative.=20