You should also get some good support here - many of the members are
friends, relatives or care givers of those who have TM.
I did rehab for several months with an occupational therapist. My right
hand was pretty useless when I got out of the hospital, but a very good
occupational therapist helped me get it back.
Like your Mom, I loved to travel before this whole thing hit. I have
recovered enough so that I can do some travel, as long as there isn't
too much walking, and that I can get my feet up periodically. I've been
to England on a bus tour, and I'm going to Panama in May. I just can't
go whole hog the way I used to. As my favorite doctor told me - "You
have to learn to live more in your mind.."
Take care and keep in touch - Ann
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My mother, Pat Tompkins has TM, she was diagnose Dec. 98. The end of
Nov. We
were all at my house cooking a hog (pig pickin) for Thanksgiving, moma
said
her arms felt heavy and the back of her neck hurt a little. That was
wedesday,
thursday she was saying her left leg was heavy and her arms still heavy
she
didn't eat much just sat around. Friday we called her Doctor told him
what was
going on, he said come in Monday am. Saturday she couldn't walk without
help
and her bladder was licking, Again we called Dr. Lowder ( Family doctor)
come
in monday morning. Sunday around 2:00pm we call an Ambulance, at the
hospital,
the ER doctor thought maybe a stroke, he called Dr. Lowder and he inform
ER
doc to send her home and tell her to come in Monday. (Lowder was on call
this
weedend) and No we didn't see him Monday we haven't seen him since. We
called
A family friend also a doctor that lives about 45 miles out of town, he
Put
mom in the hospital and call neuros, and the test begain. Many, Many
test, you
all know. Hospital stay was Nov 28 to Dec 11 then to Rehab Dec 11 to Dec
21.
Pat is 60 years old, She lives in Sumter, South Carolina She was every
active
until TM. Nov 9th she went on Holiday to England and Belgium had planned
to
leave 21st of March to vist Holand.
Today, she is home she had one set back, the doc said to much Bacifen.
After 6
day hospital stay they gave her a bacifen pump, It seems to help alot!!!
She is paralyzed, left hand,(fingers will not move), waist down. has no
bowel
or bladder control, She's had a cather since Nov 30th. Very good sprit
and
would like to get e-mail from you all.
I have been reading your e-mail about a week, and print some moma really
enjoys it. so what I'd like to ask is will some of you write her. The
family
(4 daugthers) are going to get her a computer. I think you all are
great!!
I would like to ask one more thing, where did you go for rehab and how
long
were you there?
Thanks,
Debbie #2 daughter
South Carolina
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