Re: the usual

Hammond House (mjjjhammond(AT)email.msn.com)
Sat, 13 Mar 1999 18:13:03 -0800

Nancy, Recently I posted a notice on the list about experiencing the Pins &
Needles syndrome. I got no definitive answer, but several theories. One of
the interesting one, from Gunny, I think, was that it might be your nerves
or something else trying to regenerate. I would like to know myself, but
have not found a really good answer anywhere. You can recover. I am about
80 to 85% recovered. That is a personal guess, not a medical opinion. I am
trying for more, but who knows. I think one of the most important things is
to not limit yourself and do NOT let some doctor tell you what you can't do.
If you put your mind and soul into it, you can recover much more than if you
limit yourself. Good luck, Mike in Mukilteo by the Bay.
-----Original Message-----
From: by way of Transverse Myelitis Association <myelitis(AT)myelitis.org>
<Willjays(AT)aol.com>
To: tmic-list(AT)eskimo.com <tmic-list(AT)eskimo.com>
Date: Saturday, March 13, 1999 10:27 AM
Subject: the usual

>Has anyone experienced really bad 'pins & needles '? I have noticed they
>appear more prevalent when on some days I feel more numb than others. and I
>noticed my back is more painful too. I'm starting to get really tired of
this
>disease. i have had it for a year now and am about the same. the Drs. still
>stay that it should go away about 80% in another year but sometimes i
wonder
>if they really know anything. there still is no known cause for ms either
and
>that's been around a lot longer than TM so i doubt they will bother to find
a
>cause or a cure for TM.
>i wrote my story last week so if it's on the stories list my experiences
are
>on it. i would rather have had this in my 60's not 40's because by then my
>kids would have been grown up and i could take it a little easier.
>has anyone or has anyone heard of anyone recovering completely or at least
80%
>from this? i would like to know so i have something more to look forward
to. I
>know I could be worse off but this is no picnic.
>thanks for listening and good luck to all! Nancy
>