> To all, hope i'm not being redundant.............
> To me a true relapse would be a recurring demyelination at the original
> sight [most neuros seem to categorize TM as single sight specific] ; after
> 1
> 1/2 years, a second thoracic MRI has shown a definite improvement at the
> original lesion for me. Multiple sights would then suggest MS.
Once someone has another MRI, that would, or should, be a definite indicator
either way. But from the symptom side of things -- when symptoms flare up and
one is wondering whether it is a "bad day" or relapse -- it is hard to know
when to ask the dr. to run another MRI to see. For me, loss of mobility or
symptoms worse than the original TM attack or new symptoms would cause me to
see the dr.. It seems that some TMers have repeat MRIs to see how things are
doing in the spine; I think that is a good idea, but I only had the first one
after onset. I did ask about it some months later and was told the insurance
co. would probably fuss about it. But if I had any of the indicators I
mentioned, I'd push for it.
> Lastly, some have been mentioned with questioned relapses; i did not read
> of
> others except for Gunny and his appears to be a UTI and a cellulitis, which
> may be secondary to his TM, at least the UTI, but i do not believe a
> relapse.
A lady named Janie (SHIGETTE(AT)aol.com) has reported six separate TM attacks,
but she also has lupus, and I think the one may aggravate or trigger the
other. Maria has been off-line a while due to a relapse. A few here and there
over the years have reported more than one attack, yet without the definite
indicators of MS (multiple lesions, problems in the spinal fluid, etc.).
That's why I wondered if maybe the lines need to be redefined or perhaps a new
category created.
Barbara H.