I think you have a good idea. I was fortunate that both of the neuros I have
been treated by were familiar with TM and understood very well how it
impacts people's lives. I can only imagine how unsettling it is to be
stricken by TM, only to be confronted with doctors that are not familiar
with the disease, or don't give the support and understanding that's needed.
Maybe your project can help educate more doctors and make it a little easier
for those who will be dx'd in the future.
Don from Maryland, who is paying the physical price today after helping to
move my mother-in-law into an assisted living community yesterday.
(Alzheimer's)
-----Original Message-----
From: Jennapause(AT)aol.com <Jennapause(AT)aol.com>
To: tmic-list(AT)eskimo.com <tmic-list(AT)eskimo.com>
Date: Saturday, February 13, 1999 11:53 AM
Subject: Neurologists/voices to be heard
>Subj: Neurologists/ letters
>Date: 2/13/99 4:22:11 AM !!!First Boot!!!
>From: Jennapause
>To: tmic-list(AT)eskimo.com
>
>Hi Everyone.
>
>I have a favor to ask everyone, and was wondering what you all thought
about
>it.
>I would like everyone who has been humiliated, treated as though they are
>completly nuerotic, just another wacko who thinks that they may have a
>problem
>to write a letter as though they where speaking directly to the doctor,
>letting them know exactly how they where made to feel, what they went
through.
>I am going to make copies of all the letters that are written, and I am
going
>to send them all to the neurologists in the area, and anywhere anyone
thinks
>that there neuro could use a wake up call, and any pertinent information.
>I want them all to realize that regardless what our diagnosis, first and
>foremost we are human beings and we deserve to be treated as such.
>So as I well know, we could really let them all have it, but please try and
be
>as professional as possible and if you dont want to include your last name
>that is fine, just use your first name.
>I really think that many of us should do the same thing, we really have to
let
>as many doctors as possible know that Tm is a very real and devastating
>disease, and is not something that we are being hysterical about.
>Please let me know what everyone thinks.
>I do appreciate all your help,
>thanks so much.
>If you dont want to email it to the entire list, please just send it to me.
>Thanks so much
>Wishing everyone the best
>love Jenny
>