I just wanted to welcome you to this list. I think you will find the people
here a great help, both practically and spiritually speaking. I am sorry you
have been through so much, and I hope it helps to know you are not alone. I
look forward to hearing from you again
Mykella
Tardonas (by way of Transverse Myelitis Association ) wrote:
> In 1981 I was diagnosed with TM I was 13 years old it happened during the
> night.
> The day before I was riding my bike and roller skating in the drive way. I
> was told that there was a virus that attacked my spinal cord and damaged
> the nerves in the spine, there was server back pain and a burning sensation
> also both legs had tingleing sensations in them, I was walking very slow
> and the steps were very heavy and short. I was given Tylenol and I went
> back to sleep.The nixt day when I woke up I was paralized from the neck
> down and my breathing was very weak.I also lost use of my bladder and bowel
> functions. I was put on Ditropan, Baclofin,and Septra DS. Also later in my
> adventure I was resusatated 3 times. I had physcial therapy for a long
> time. I recieved therapy at West Point therapy building where we were told
> all the therapy in the world wouldn't help, but we went any way. 3 years
> later I started getting migrains I was taking codine, cafergot, which I
> don't take anymore. The leg spasms were horrible and uncomfortable, at
> times at night it was worse. Few years later I had heal cord surgury on
> both my legs at the same time, it helped my right leg some but didn't help
> my left leg at all. They were going to do hamstring surgury but it was
> never brought up again. I've had lots of MRI's, Cat scans, spinal taps and
> nerve blocks. I had to learn to use a catheter and use it for the rest of
> my life due to a flactic bladder which I carry with me all the time. Now
> at the level I am at everything is ok so far I have noticed some weakness
> but no increase in the strength so I guess this is where my life ends with
> this no improvements and no new strengths. Thank you for letting me tell my
> story my Email address is taz5(AT)ptd.com.
>
> I was rushed to West Point Hospital where they did a load of useless
> testing when they were done they airvacked me to Walter Reed Army Medical
> center where they did alot of the same testing and they diagnosed me with
> TM.