I have spasticity in my left leg, however I am now again walking without a
cane, however fatigue is a very big problem. I gave up PT and am going to a
health club to swim and do water aerobics - I figured being around healthy
people would help my mentality. However, sometimes I go and come home and
sleep for 3-4 hours!
When I was in the hospital, they had me so overmedicated (too many M.D.'s),
that they had me drugged to the point I could not lift my arms. They then
withrew all medications, when the MRI's were negative and abruptly shipped me
to rehab. A psychiatrist there told me I was depressed. . . .imagine that?
My neurologist suggested a "conversion" psychological component, where your
body reacts unconciously to stress and you do not know it. !, however went
from a wheelchair to my feet in one week. Something is real wrong with this
picture in my mind. I never want to see another physician again. I'm scared
of them. If it hadn't been for a PT friend of mine telling the MD's that I
was overmedicated, it probably would have killed me. I still only remember
VERY MINIMAL from the acute experience, other than feeling real bad in PT one
day and my MD suggesting they send me to the ER.
It is hard for anyone to know for sure what someone else feels or does not
feel. Especially when they are heavily medicated. It is quite subjective.
The neurologist may not "believe" the patient, when the distribution of pain /
sensation/ temperature does not follow "normal" distributions. This is why MS
is always so difficult to diagnose.
I would suggest supporting whoever is ill with unconditional love and
acceptance. Regardless of the "name" that is given to it, the goal is regain
your health. I will keep you in my prayers.
Bewildered in sunny Florida, where you can find a pool for aquatic rehab!