Re: some questions

Connie Wenciker (c_wenciker(AT)hotmail.com)
Sat, 06 Feb 1999 18:39:24 PST

Hi Roberta.
First let me welcome you to the greatest most compassionate group of
people I know. Though I am sorry that you had reason to find us.
Second let me say, Italy is not the only country that doesn't know much
about Tm. It was evident early on that the Drs. caring for my son Alan
had never seen a case of TM, and could not tell us anything to expect.
Since I do not personally have TM I'm not sure if I can or should
comment on your questions re: recovery, however; from all I have been
told in this group and from my sons progress, I would have to say there
will probably be some improvement, (perhaps a lot), but since every one
is different, and each ones case is different, it is hard to say exactly
to what extent she will recover. She will have to work hard and ask God
for courage, strength, and patience. Be assured my prayers will be with
her too. I'm sure others will have more information for you. Please
write for information, and encouragement any time, and give us a
progress report.
Connie from Kansas where it is misting and 32 degrees


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>From: "ferrix" <ferrix(AT)net-one.it>
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>Subject: some questions
>Date: Sun, 7 Feb 1999 00:55:53 +0100
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>i, I am new to the list, this is the first time I write.
>I have a friend in the hospital since 3 weeks ago and she has been
diagnosed
>TMA. Right now she can't move and breathe by herself, the level of TMA
is
>C3.
>I'd like to know if everyone has had a same disease or knows someone
who had
>it and can tell me something about expectations of a total recover or
>medicines or treatments that can help in this way.
>A big problem is that here in Italy, where I live, there are very few
>aknowledgments about the disase.
>Does anyone of you know if there are structure in Europe that can be
>considered specialized in TMA?
>I will thank anyone who just answers to my mail
>
>Roberta
>
>

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