Re: Update: ?TM or MS

AZMAINIAC (AZMAINIAC(AT)prodigy.net)
Sat, 23 Jan 1999 23:27:39 -0800

Christopher Leighton wrote:
>
> 23/1/1999
>
> Well, thought I might update my story from October 98. I am guilty of
> not following the internet postings the past 4 months. My second flare
> abated slowly. The spasticity and weakness in my left leg has
> improved but comes and goes so now I have a permanent limp. Bladder
> frequency and mild incontinence are also appearing. I have developed
> new problems with my vision including intermittent dimming of my sight
> from the right eye. The color vision is also distorted from my right
> eye so at times, it is like wearing 3D glasses. I have had bouts of
> stabbing eye pain, and occasional double vision. I have now seen 7
> neurologists from Windsor to Toronto, Ontario. Also, throw in a
> rheumatologist, and neuro-ophthalmologist for good measure. I have
> had all types of responses to my numerous, unusual problems from
> compassion and concern to the other end of the spectrum One
> neurologist spent 5 minutes reading my chart while I was talking,
> spent about 1 minute examining me then suggested I had an anxiety
> disorder. This, after driving 4 hours through a blizzard to see him.
> Being a physician I felt like reporting him to the College of
> Physicians and Surgeons! I am becoming more convinced that my problem
> is evolving into multiple sclerosis though, MRIs have not been
> abnormal thus far. I am keen to start interferon therapy, however,
> without plaques to see, my neurologist is not keen to prescribe.
> Unfortunately, as I write this I am once again having severe neck pain
> and suspect flare #3 is starting.
>
> I am always taken aback by the responses I have had from co-workers,
> friends and families. One friend emailed me recently and asked "how
> is the wheel chair ramp coming". Is that supposed to be funny?
> People at work try to be helpful... but when you are asked how are you
> feeling 30x time in a day it becomes taxing! Unfortunately, working
> in a smaller city, it is harder to preserve my privacy. People I
> hardly know suddenly feel entitled to know the details of my medical
> assessments -- I guess I should be grateful to see this perspective
> first hand. I hope it will make me a better physician. But for now,
> I have to struggle with adapting the workplace so I can be comfortable
> and continue to practice medicine.
>
> The literature the past few months has been scant. One Scandanavian
> study looked at EMG studies (shocks applied to muscle groups) with
> patients presenting with TM. Patients with abnormal EMGs early on may
> have more long term disability.
>
> I would be interested in knowing if anyone has been started on
> interferon or Copaxone without a firm diagnosis of MS (ie recurring
> transverse myelitis).
>
> Sincerely,
>
> C. Leighton MD
>
>
Dr. Leighton,
I used to have dimming. It was strange. Things would get brighter when I
was urinating.(Things would look brighter when I was"pissed off"?). I
had quit smoking for 5 years. I had a tiff with my ex one day and went
out for a drive. I stopped to get a soda and bought a pack of
cigarettes. When I went home I went out in the backyard and had one. I
coughed a few times, but as I was smoking my eyesight got better.I
learned that nicotine can be a vasoconstrictor or a vasodilator,
depending on the person.DON'T ANYONE START SMOKING!!! READ FURTHER!
My psychologist confirmed this by telling me that he had some people
doing biofeedback. When some people smoked, biofeedback was easier and
for others it was harder.
I was also have problems that I felt was losing my hearing every now
and then. I was checked out by a well known opthamologist, a
neuro-opthamolgist, otolarnynologist?(Ear, Nose and Throat) and an
endocrinologist(check my thryoid).I was sent to a woman Neurolgist who
helped the problem. She gave me this to read.

"Annals of Neurology", Vol 21, No. 5, May 1987, 'Disorders of the
Autonomic Nervoous System: Part 1. Pathophysiology and Clinical
Features'
J.G. McLeod. DPhil, FRACP, and R.R. Tuck, PhD, FRACP--From the
Department of Neurology, Royal Prince Alfred Hospital, and the
Department of Medicine, University of Sydney, Sydney, NSW2006
Australia(Thumbs up to those from 'down under'! Hi, Errol.)

The following are excerpts that I feel are applicable and partially
understandable to everyone with TM

p421
"Direct recording in humans has shown that symopathetic nerve fiber
activity in muscles increases in response to a fall in blood
pressure[44]to changes in posture from the lying to sitting anfd
standing positions[31], and to the application of negative pressure to
the lower body, which is thought to unload intrathoracic low-pressure
volume receptors[173].".......
(My eyesight would get better when I was lying down.)

"Diseases of the Autonomic nervous system give rise to impaired control
of blood pressure; heart rate; sweating and temperature regualtion;
bowel; bladder, and sexual function; gastrointestinal tract; pupils; and
lacrimal glands."................

p 423
"Disorders Associated with Peripheral Neuropathy
The autonomic nervous system is affected in many peripheral
neuropathies[96,115,,116]. From a practical viewpoint, they may be
grouped into those in which autonomic dysfunction is clinically
important and may be a presenting feature, and those in whwich it is
mild and may often be unrecognized(see Table).".............

"Impaired sweating ability on the extremeties is common, probably
resulting from degeneration of the cholinergic postganglionic
sympathetic unmyelinated fibers that travel with peripheral nerves to
innervate sweat glands or demyelination of the preganglionic sympathetic
efferent fibers. Hyperhidrosis may be seen in partial nerve injuries
causing casualgia or when ther is pressure on the nerve root, which
occurs in malignancy [14,88,94] and in some toxic neuropathies
[14,88,99].When the ability to sweat is impaired on the extremeties,
excessive compensatiory sweating may occur on the trunk and
face.Orthostatic postural hypotension results from damage to
small-diameter myelinated and unmyelinated fibers in affferent and
efferent nerves in the baroflex pathways. Postural hypotension therefore
most commonly occurs in diabetes and amyloid disesase in which these
small fibers are affected and in acute inflammatory neuropathy when
segmental demylenation affects the myelinated autonomic fibers in the
vagus and sympathetic pathways. Orthostatic hypotension is most likely
to occur when fibers in the sphlanchnic vascular bed are pathologically
involved, since the latter plays an important part in blood pressure
regulation in humans [112,115,116]. Impaired control pof heart rate
results from vagal damage in patients with autonomic neuropathy,
particularly with diabetes [112,185].
Bladder dysfunction, impotence, and pupillary abnormalities are other
clinical manifestations of autonomic dysfunction in peripheral nerve
disease."

As I was reading, I saw the part about sweating which has been brought
up by others, so I included it.
I have been taking Clondine and it helps.

John, MD, GP {Manic Depressive, Guinea Pig(for baclofen pump)}

P.S. I limped for many years after I recovered from the paralysis. Every
doctor felt it was due to TM. After I got my baclofen pump and was
walking, the doctor was watching me walk. he then had me lie down and
measured from my navel to each ankle. My left leg was 5/8 of an inch
shorter than my right.
The doctor was Dr. Richard Herman, Rehab Medicine. He was Medical
Director of the Good Samaratin Rehab Institue in Phoenix at the time. He
did the blind study for the pump. He had spent 5 years at Temple, 5
years at Stanford and 5 years at Dartmouth.

P.P.S. I know should credit the references, but I am not a fast typist
and there are 177 references in Part 1 and over 188 in Part 2 of the
report. If anyone would like them, please let me know.