Thank you!
Gail Lara (gail(AT)loop.com)
Wed, 20 Jan 1999 21:04:57 -0800
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Hello,
I sent my very first letter
to your community on Monday night, and the feedback that I have received has
been enormous, and so comforting. I believe that I have been able to
individually reply to everyone, but just in case I accidentally left somebody
out, I thought I would send one to the List.
It really does feel good to
hear from people in the same boat. It is nice to hear from other's who like me,
are very close to someone with TM, as well as being able to hear from other
people who have it and who ARE NOT DEPRESSED!
My Mother's symptoms started
in 1994, but they didn't get severe until the end of 1997. She is pretty much
numb from the neck down, but is able to get around with a walker (slowly and
painfully). She has the tight "girdle" feeling around her trunk, and
is losing her bladder and bowel functions.
She is convinced that there
is no turning back. I would love to be able to share more stories with her (like
Lynn Rose's) of people who couldn't walk or were near paralyzed and have gained
back some of their functions. Would I be best directed to go to the archives,
that I've heard some references too?
I have forwarded most of
your responses to my Father, who is finding a great deal of comfort as
well. We are working on a plan.
Thank you
everybody!