RE: help me please

Lindstrom, Ann (annlindstrom(AT)lucent.com)
Mon, 18 Jan 1999 14:40:01 -0800

Gwenn - First, welcome to the group. You'll get lots of information here.
What have your docs said about your increasing weakness and the
incontinence? Sometimes you have to really be in their faces. Alot of us
are kind of perched on the fence between myelitis and MS. Others have
myelitis that has reoccured - not common but it happens. Our thoughts are
definitely with you. Keep us posted on what's happening - Ann

> -----Original Message-----
> From: Is4031egl(AT)aol.com [SMTP:Is4031egl(AT)aol.com]
> Sent: Monday, January 18, 1999 12:19 PM
> To: dhudson(AT)cts.com tmic-list(AT)eskimo.com
> Subject: help me please
>
> I was diagnosed with transverse myllitis in 1976 after an allergic
> reaction to
> funeral[sorry of spelling]. I had urinary retention, then a spinal tap
> and
> neuro said tm at t6-t8 level. I also have cerebral palsy. Both these
> disabilities andn't progressive according to my doctors and nurses. I
> read
> all your email and I am confused and frustrated and MAD. About 5 years
> ago I
> started having bowel incontinance, I've had urinary incontinance since
> 1980.
> I've gotten a lot weaker and depressed lately. WHAT ELSE WILL HAPPEN!!!
> GWENN, FROM THE BRONX, NY.