There are about three of us Barb(ara)s on the TMIC list.
It is quite possible you know more than your drs. about TM. My primary neuro
was very well informed, and I felt so blessed that, after moving out of state
and having to start all over again with new drs., my primary care dr. was very
familiar with TM. But with some others I find myself having to explain it and
explain how it affects what I'm seeing them for. I don't mind that too much,
as long as they are willing to listen.You can think of it as helping to
educate them for the next TM patient they have. :-) There are some very good,
well-written links from the TMA web site as well as the TMIC site that you
could print out take to them if necessary.
My treatment was pretty standard for TM: a few days of steroids in the
hospital, physical therapy for three months, and trying various medications
for various symptoms. Some medications helped, but not enough, for me, to
offset the side effects, so I'm not on any for TM at the present time. Prayer
helped most of all, and the PT next after that. I'm just starting to try to
get exercise incorporated into my schedule again on a regular basis.
Recovery varies from person to person. Some seem to get to a stopping place,
but many continue to see improvement over the months and even the years.
Feel free to jump in with questions, concerns, comments any time!!
Barbara H.
In a message dated 1/16/99 9:53:45 PM EST, Bfjwheels(AT)aol.com writes:
> I'm interested in hearing about any and all types of
> treatment that people have found helpful. I would also like to know if
> recovery continues, or does it level off at a certain point. When I talk
to
> the doctors, I get the feeling that I know more about this condition than
> they
> do...pretty scary!
>
> I'm glad to have found this group, and I look forward to corresponding with
> you all.
>
> Sincerely,
> Barb (Bfjwheels)