Re: new e-mail subscriber
Jo Ellen Finkelstein (ghellen(AT)ninenet.com)
Mon, 11 Jan 1999 13:36:11 -0600
Lynne & Skip Barnes wrote:
>
> hi,
>
> My name is Lynne and I am a RN with an original diagnosis of TM and now
> have a new diagnosis from the University of Wahington of "DeVick's"
> disease which seems to be TM with the optic nerve pathways involved.
> Does any one else know about this, it's outcome or prognosis?
>
> I worked in a family practice clinic five years ago and that is the
> number two most infectious department of medicine after ICU. We had an
> early inflenza outbreak about three weeks before flu shots were to come
> out. It hit our office like a ton of bricks, clients and staff both.
> Three weeks after I recovered numbness, tingling, severe weakness,
> shortness of breath, and back pain started from the legs progressing to
> my arms and eventually my face and chest. My wonderful boss that never
> wants me to be sick thought I was nuts! He checked me out but thought
> it might only be my back that was fractured in a tornado 14 years
> before. But he did send me to a neurologist who found my BP to be
> 220/110,heart rate very arrythmic, and severe hyper reflexs.
>
> I was admitted and later that night lost my diaphragm and was intubated,
> on a vent for five days, and hospitalized for six weeks including rehab.
> Iactually recuped well to most of you but to me it isn't at all like I
> hoped. Here I am a "A" person is a losest "B" body and I hate it!
> It seems the more symptoms th more meds but nothing changes. Wouled be
> interested in hearing from others.
>
> Thanks for letting me vent. LynneHi Lynne, Joellen here. Sorry to meet you in this situation. I came
down with TM 10-6-96 six months after my husband died from cancer. I
worked for a nursing agency and had plans to go back and finish up my
BSN obviously not an option now! I am T-10 para and am still in my
chair rolling along...presently my neuro and I are trying neurontin to
see if it will control the pain/tingling/burning in my feet and legs.
Some relief so far but not sure I can get up to much higher dose, since
I get really dopy when I go higher than I am now. Hope things get
better for you. Joellen