Re: new e-mail subscriber

nobeck(AT)garlic.com
Sun, 10 Jan 1999 15:36:02 -0800

Hi Lynne-
I haven't responded in a while but I've been reading most of your responses.
Lynne, I'm a RN too and was diagnosed in Aug of 98 and the first neuro I saw
mentioned Devics disease (that's the way he spelled it). I couldn't find
much info on it, except that kids with it have a good prognosis. My vision
has improved as my tm symptoms have improved so for now I'm happy. If you
find out any more info, of if anyone else does, let me know.

Susan D.

>hi,
>
>My name is Lynne and I am a RN with an original diagnosis of TM and now
>have a new diagnosis from the University of Wahington of "DeVick's"
>disease which seems to be TM with the optic nerve pathways involved.
>Does any one else know about this, it's outcome or prognosis?
>
>I worked in a family practice clinic five years ago and that is the
>number two most infectious department of medicine after ICU. We had an
>early inflenza outbreak about three weeks before flu shots were to come
>out. It hit our office like a ton of bricks, clients and staff both.
>Three weeks after I recovered numbness, tingling, severe weakness,
>shortness of breath, and back pain started from the legs progressing to
>my arms and eventually my face and chest. My wonderful boss that never
>wants me to be sick thought I was nuts! He checked me out but thought
>it might only be my back that was fractured in a tornado 14 years
>before. But he did send me to a neurologist who found my BP to be
>220/110,heart rate very arrythmic, and severe hyper reflexs.
>
>I was admitted and later that night lost my diaphragm and was intubated,
>on a vent for five days, and hospitalized for six weeks including rehab.
>Iactually recuped well to most of you but to me it isn't at all like I
>hoped. Here I am a "A" person is a losest "B" body and I hate it!
>It seems the more symptoms th more meds but nothing changes. Wouled be
>interested in hearing from others.
>
>Thanks for letting me vent. Lynne
>
>
>