a difficult time

jo.macey(AT)sims.co.uk
Sun, 3 Jan 1999 12:56:00 -0000

Hi, I don't want to become unpopular by asking the next question so fingers
crossed I don't......
My Neuro said "we can't be sure if you will make a full recovery" ok this is
fine but......I had a bad week at the beginning of December and my husband
rang Addenbrookes Hospital and spoke to a consultant that didn't really know
who I was but said the following to my husband "we expect a full recovery
blah blah blah" I am having trouble now with the will I/won't I senario and
basically if the recovery I have had in the last 3 months is the biggest
step (which is improved from when TM first happened) then fine I can kinda
get on with things but my husband (through no fault of his is trying to be
very positive) because they are expecting a full recovery I'm feeling
somewhat ummmm of a (I can't think of the word I want to use) failure (I'll
use that term lightly) because I'm not making the improvement I feel they
(family) are all expecting and this is making me feel extremely pressurized
(I KNOW stress doesn't help anyone) but I don't know how to say "hey, look
yes I've had a good day but don't expect too much my body will make progress
when it wants too and I don't have much say over it", but this always comes
out negative and that's not what I want so any ideas - does anyone know of
anyone that's made a full recovery with no relapses???? I'm sorry I know
this is my problem and I feel very selfish with the ME,ME,ME stuff - my
moods are very up and down and I want to be happy, smiling but I can't get a
grip on things at the moment and yes I am one of the lucky one's great
family, friends and this makes me feel even more selfish :-(
I'm sorry everyone - I hope you all had a great christmas and new
year.......
Oh yeah! The Red Cross gave me a wheelchair at last so that's a success and
I will be going to the gym to try out their treadmill should be fun
Love to you all
jo