My thoughts and my prayers are with you and William. You must both be very
strong to have endured this, and I will pray that His strength will comfort
you and guide you through this crisis time
Love, Mykella
Barbara Dusel wrote:
> Hello everyone,
>
> Someone asked about shoes. We had that problem with William's shoes
> a few years back. He really is size 11, but we ended up with Gym Shoes,
> New Balance, EEEEE (5 E's) and we tried everything, called everywhere.
> The swelling has a lot to do with it for him - we have experimented with
> different variations of medicines to keep the swelling down. I know
> neurontin contributes to the swelling and some of the other stuff he
> takes also contributes. (maybe baclofen just a bit).....The 13's weren't
> even working until some guy told us to take out the sole and buy some in
> a grocery (more of a flat insert)....that did the trick for him! We're
> getting ready to need some new shoes pretty soon, so I don't
> know.....what we'll do this time. I've seen a couple of ladies in wheel
> chairs with great looking shoes. One girl I asked and she said they
> were Reebok (sp?) but I don't know where they were ordered from. They
> were a bigger size and had velcro. We tried several mocassin type
> things, even a bootie from Kmart once, but they made the feet sweat, so
> he finally gave up on those.....Anyway, we sure can understand the
> problem. I think reducing his neurontin helped more than anything, but
> don't do that without asking the Doctor. I'm not a Doctor. (smile)
>
> By the way, William is doing very bad tonight. We had the hardest
> Christmas day I ever saw. He has the transverse myelitis, and then also
> just had radiation for prostate cancer. After 37 treatments, he quit,
> and the side effects just set in really bad---bad bad diahrea and a lot
> of pain and incontinence. It's almost unbearable.
> For some reason, he tried Depends once and can't deal with them.
>
> Please say a little prayer for him, okay? I know you all have
> posted a lot of things and we haven't really answered or encouraged, but
> we've been down at the Cancer Center. I'm going over there after while,
> again, but by now he might have pushed his button to go off to the
> hospital. It's really hard, here. Thanks.
>
> Barb D. in Louisville