Re: new club member
Jo Ellen Finkelstein (ghellen(AT)ninenet.com)
Tue, 22 Dec 1998 22:04:58 -0600
Dmensha(AT)aol.com wrote:
>
> for the time being, ive been diagnosed with TM. id never heard of TM before,
> so im trying to learn as much about it now as i can. what a relief to see all
> of the talk back and forth. reading some of the posts, i know i have it
> mildly. considering how much i freaked out at my symptoms, with those of you
> who faired worse, i am SO impressed with your state of mental health.
>
> about 2 months ago, i lost a varying degree of sensitivity in my hands,
> abdomen, hips, and legs. i actually "burned" part of a finger when i was
> putting up christmas lights and the filaments from a broken bulb, still part
> of the strand that was plugged in, were somehow jammed into my finger. took a
> little while to figure it out, but good thing im not ENTIRELY numb. also,
> when i bend my neck (bow my head), i experience a feeling of "electrical
> shock" throughout my entire body below my neck. something my doc called
> "Lherittes Phenomenon". anybody else got that one?? Though i havent had the
> spinal tap yet, i have been in the betty crocker oven several times- with and
> without dye. the MRIs show something that looks like a snowman squished in
> the middle of my spinal cord at C2. most likely an area of inflamation, so
> the neuro says. is that what some of you mean by "lesion", or is that
> something else? does this all sound familiar to any of you?
>
> when this all happened, i spent a few weeks being VERY on edge. very freaked
> out. now that i have some sort of a lead and perhaps a valid diagnosis, i
> guess i just want to compare notes. anybody else experience whats called
> "Lherittes Phenomenon"? and, did it go away for any of you???
>
> and, THANKS for existing. i am SO HAPPY to find this group!
>
> danielleHi Danielle, Joellen here. Sorry you had to join us but happy you found
us! If you access the archives we had a lot of discussion of
Lherrmettes sign here a few months ago. Yes many of us have reported
this problem and some have found that it goes away after awhile. Isn't
it fun????? to have the betty crocker oven used on us?! When they first
tried to do me we discovered how claustiphobic I am!
Joellen