Hello all:
Its been awhile since I originally posted the questionnaire. Actually it
was August 10th. I've waited to post the results in hopes that I would
receive more responses.
1. Total responses. n=66. Female = 38 (58%), Male = 28 (42%)
2. Age at Diagnosis:
Youngest: 5 months. Oldest: 67 years
Average Age: 36.5 years
Age 0 - 10 9 (13.6%)
11 - 20 5 ( 7.5%)
21 - 30 4 ( 6.0%)
31 - 40 14 (21.2%)
41 - 50 22 (33.3%)
51 - 60 9 (13.6%)
61 - 70 3 ( 4.5%)
3. Current Age:
Youngest: 4 years Oldest: 73 years
Average Age: 42.6 years
Age 0 - 10 4 ( 6.0%)
11 - 20 3 ( 4.5%)
21 - 30 3 ( 4.5%)
31 - 40 14 (21.2%)
41 - 50 22 (33.3%)
51 - 60 16 (24.2%)
61 - 70 3 ( 4.5%)
71 - 80 1 ( 1.5%)
4. Where are we:
We are in 23 States and South Africa, Australia, Canada, The
Netherlands, Hong Kong and England. Of course, the majority were in
New York closely followed by Washington, California and Texas.
Also heard from Poughkeepsie.
5. The real purpose of the Questionnaire was to identify competent
physicians that could be recommended to those who are currently
suffering with those new symptoms and fears as they experience the
onset of Transverse Myelitis. A total of 47 physicians were
identified in the 23 States and foreign countries. The list is being
forwarded to Deanne, Jim and Sandy. It is nine pages in length and
IÆll be happy to forward a copy to anyone who completed the
questionnaire.
6. The list of medications we take goes on forever. With the number of
us taking Baclofen alone the drug company probably wont want to
support research because of the loss of revenue. <g> Some of
the drugs listed were not prescribed for TM but were included in the
submitted questionnaires. With all of the recent discussion on
herbal product I did not include them. The drugs include:
MEDICATIONS
( 1) Allegra Antihistamine
( 2) Amantadine
( 3) Amitriptiline (Elavil) Antidepressant
( 4) Baclofen (Lioresal) Skeletal muscle relaxant
( 5) Baclofen Pump
( 6) Bupropion Antidepressant/Smoking
( 7) Carbamazine Anticonvulsant
( 8) Citrucel LAX Cathartics & Laxatives
( 9) Colase Cathartics & Laxatives
(9A) Cylert (Pemoline) Respiratory Cerebral Stimulants
(10) Dantrium Skeletal muscle relaxant
(11) Detrol Urinary anti-spasmodic
(12) Diazepam (Valium) Antidepressant
(13) Dilantin Anti-epileptic drug
(14) Diovan Hypotensive agent
(15) Ditropan Genitourinary smooth muscle relaxant
(16) Doxipen (Sinequan) Antidepressant
(17) Ducusate Cathartics & Laxatives
(18) Estrace Estrogen
(19) Flonase Anti-inflammatory
(20) Furosemide (Lasix) Diuretics
(21) Glucophage Antidiabetic agent
(22) Glucotrol XL Antidiabetic agent
(23) Glyburade Antidiabetic agent
(24) Hydrocodone (Vicoden) Opiate agonists
(25) Imipramine Antidepressant
(26) Klonopin (Clonazepam) Anticonvulsant
(27) Lactulase Cathartics & Laxatives
(28) Lorazapam (Ativan) Anti-anxiety agent
(29) Macrodantine Urinary anti-infectives
(30) Morphine Opiate agonists
(31) Morphine pump Opiate agonists
(32) Motrin (Ibuprofen) Anti-inflammatory
(33) MSIR Opiate agonists
(34) Neurontin (Gabapentin) Anticonvulsant
(34) Nortriptylin (Pamelor) Antidepressant
(35) Oxycodone Opiate agonists
(36) Oxycontin Opiate agonists
(37) Paxil Antidepressant
(38) Percocet Opiate agonists
(39) Percodan Opiate agonists
(40) Predisone Steroid
(41) Premarin Conjugated estrogen's
(42) Primadone Barbiturates
(43) Prozac Antidepressant
(44) Ranitidine (Zantac) Antacid
(45) Salbutamol
(46) Tegretol (Carbamazepine) Anticonvulsant
(47) Topamax Anticonvulsant
(48) Trimethoprim Urinary anti-infectives
(49) Tylenol w/codeine Opiate agonists
(50) Tylox Opiate agonists
(51) Xanax Anti-anxiety
(52) Zanaflex Skeletal muscle relaxants
(53) Zoloft Antidepressants
As a point of interest, I thought IÆd include a top ten list of
those who have survived TM the longest. The format is: Name, age at
diagnosis and year of diagnosis.
10. Jennifer Spencer 12 07/85
9. Claudia Erb 37 05/85
8. Roger Livingston (Doc) 39 11/81
7. Ken Oliver 55 02/81
6. Paula Lazzeri 12 10/79
5. Larry Throne 18 /74
4. Maureen Wroblewski 15 11/67
3. Al Weger 7 03/63
2. Dennis Galvin 5 months 11/61
1. Kris (????) 9 05/59
Obviously we have a wide range of current ages and experience.
This was interesting to say the least.
Doc