<< << I have written before but no reply.I have been having test and they cant
find anything wrong.My nero said that I got a viral infection in my spinal
cord and that is all he knows.I have numbness and tingling in my feet and legs
and my groin area is numb.Iam on baclofen and neurontin.The baclofen help the
muscle spasm and the pain.The neurontin I have only been on for 3 days because
I was scared to take it.Could someone tell me if they feel this way and for
how long and if they have been on these meds.Thanks
Mary
Hello & Welcome Mary,
I understand how scared you must be as I believe we all were. It is a scary
thing to go through not knowing what is going on with you, yet knowing that
something is very wrong.
Did you have an MRI of your spinal cord? And if you did were there any
lesions? If so where? Is your spinal cord swollen? How did your neuro come to
the conclusion that you have a viral infection of your spinal cord?
I have not been on baclofen but have been on neurontin but not for TM. I was
on it for my seizure dis-order. It did not control the seizures so I was taken
off of it. Sorry I cannot help you with what you are looking for as far as the
meds, but there are many on this list who can. I am sure you will hear from
many.
I am affected at C5-6 and have numbness and tingling in different areas. My
right arm, pins and needles in my legs, low back pain, loss of bladder control
as well as not being able to feel when I have to go. These symptoms of course
were worse at the onset, and some have gotten better with time. I have loss of
muscle strength in my arms and my hands. When my lower back is in excruciating
pain, mylegs freeze up and I can't move until the pain subsides.
At onset I could not walk with a stable gait, although I was not paralyzed.
Also at onset I had what I thought was a terrible flu followed by a "pox" like
rash and my skin burned from the inside out like nothing I have ever felt
before.
Please fill us in with as many details as you can, i.e. tests you have had,
all affected areas, what happened to you right before you fell ill, etc.
Hold tight and chin up. We are a wonderful group with vast amounts of
information and the best support you will find.
Maria in Tonwanda where Mary (Keebekat) wants to send her snow!!!! >>
From: MTripimcca(AT)aol.com
Return-path: <MTripimcca(AT)aol.com>
To: msterpho(AT)winnie.fit.edu
Cc: tmic-list(AT)eskimo.com
Subject: Re: TM
Date: Thu, 10 Dec 1998 23:02:51 EST
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Content-type: text/plain; charset=US-ASCII
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In a message dated 12/10/98 10:47:14 PM Atlantic Standard Time,
msterpho(AT)winnie.fit.edu writes:
<< I have written before but no reply.I have been having test and they cant
find anything wrong.My nero said that I got a viral infection in my spinal
cord and that is all he knows.I have numbness and tingling in my feet and legs
and my groin area is numb.Iam on baclofen and neurontin.The baclofen help the
muscle spasm and the pain.The neurontin I have only been on for 3 days because
I was scared to take it.Could someone tell me if they feel this way and for
how long and if they have been on these meds.Thanks
Mary
Hello & Welcome Mary,
I understand how scared you must be as I believe we all were. It is a scary
thing to go through not knowing what is going on with you, yet knowing that
something is very wrong.
Did you have an MRI of your spinal cord? And if you did were there any
lesions? If so where? Is your spinal cord swollen? How did your neuro come to
the conclusion that you have a viral infection of your spinal cord?
I have not been on baclofen but have been on neurontin but not for TM. I was
on it for my seizure dis-order. It did not control the seizures so I was taken
off of it. Sorry I cannot help you with what you are looking for as far as the
meds, but there are many on this list who can. I am sure you will hear from
many.
I am affected at C5-6 and have numbness and tingling in different areas. My
right arm, pins and needles in my legs, low back pain, loss of bladder control
as well as not being able to feel when I have to go. These symptoms of course
were worse at the onset, and some have gotten better with time. I have loss of
muscle strength in my arms and my hands. When my lower back is in excruciating
pain, mylegs freeze up and I can't move until the pain subsides.
At onset I could not walk with a stable gait, although I was not paralyzed.
Also at onset I had what I thought was a terrible flu followed by a "pox" like
rash and my skin burned from the inside out like nothing I have ever felt
before.
Please fill us in with as many details as you can, i.e. tests you have had,
all affected areas, what happened to you right before you fell ill, etc.
Hold tight and chin up. We are a wonderful group with vast amounts of
information and the best support you will find.
Maria in Tonwanda where Mary (Keebekat) wants to send her snow!!!!