Re: Mayo Clinic TM study
Don Cassell (dcassell(AT)amdyne.net)
Tue, 24 Nov 1998 21:50:09 -0500
Not having read all the archived posts to find out what has gone before, I
contacted the NIH National Organization of Rare Disorders (NORD) after I
checked their list and found that TM was not on the list. I recieved a reply
from Steve Groft who said that they plan to add TM to the list soon. He also
referred me to Dr. Bruce Weinshenker at Mayo Clinic. Dr. Weinshenker is
doing a study of patients with TM. Steve also suggested that I might want to
suggest that my Johns Hopkins neuro contact Dr. Weinshenker. I would think
that Hopkins' neuros are aware of research and studies at other major
institutions, but I don't want to assume that to be the case. Some of you
might want to share this information with your own neuro. Dr. Weinshenker's
phone number is 507-284-2511.
Don from Maryland
-----Original Message-----
From: NMack92(AT)aol.com <NMack92(AT)aol.com>
To: annlindstrom(AT)lucent.com <annlindstrom(AT)lucent.com>; tmic-list(AT)eskimo.com
<tmic-list(AT)eskimo.com>
Date: Tuesday, November 24, 1998 6:20 PM
Subject: Re: diagnosis?
>Ann,
>
>Hmmm. My neuro said he has refered people there before -- all it takes is
a
>phone call. So who knows? If I went, I certainly would call my
insurance.
>I heard that Mayo is kind of like a cattle call. You sit on folding chairs
>for hours waiting for your name to be called. Any one out there who knows?
>
>Nancy, with Mayo-phobia
>