Re: diagnosis?
Jo Ellen Finkelstein (ghellen(AT)ninenet.com)
Sun, 22 Nov 1998 21:06:44 -0600
NMack92(AT)aol.com wrote:
>
> Group,
> I went yesterday to see my neuro. He still will not say "yes, you have TM".
> He says, "I am afraid that you may have TM, but I am not sure". I did ask if
> my slighlty bulging disk at C-5 , S-1 would cause all my symptoms, and he did
> reply with a definite "No". He also said that I do definetily have a problem
> with my spinal cord. I think he is the kind of Dr who is overly cautious.
> Maybe it is also because my symptoms are not severe. So, he talked to me
> about going to Mayo for a diagnosis if I want, but it seems to me that I
> should be able to get a second opinion from someone in town. I just don't
> understand with the symptoms I have that he can't commit (and I can't even
> send him to neuro land). It is not that I want TM, I just want to know what
> the hell is wrong with me! As far as I am concerned -- I have it.
>
> He was going to prescribe neurontin for the buzzy legs, but I reminded him
> that he also mentioned zoloft to me and that I would rather take that because
> of its added benefits. So that is what I am taking. My first one this
> morning. I am a bit tired and foggy, but I had a long week so it may not be
> from the drugs. I know others are taking zoloft, which they mention for
> depression, but that is not what my Dr primarily prescribed it for.
>
> I am supposed to see him again in about 3 weeks to see how the drugs and I are
> doing, then he is going to schedule another MRI to see if there is any change
> in my lesion. I am afraid that this is just the begninning of MS. (The woman
> who lived in the house before we bought it got MS. I think it's cursed!) He
> has not prescribed any more PT. He said that will not make the tingling go
> away. I am trying to do some things at home, like yoga. I plan to get the
> bands from Gunny too.
>
> I am just venting. I am not sure exactly what my next step is.
>
> Nancy, who has found frustation not only in the disease, but in dealing with
> the neuros.Hi Nancy, Joellen here. I know how you feel, When I initially went into
the hospital they couldn't find what was wrong with me. The first
diagnosis was " psychological paralisis due to stress" i.e. all in my
head! They sent me home after a month and I was home for a week when I
had another bad backache and this time they ran an MRI (after they gave
me IV Valium to prevent my claustiphobia) and found the lesion on my
spine. THEN they decided it was TM. I spent almost 6 months in the
hospital for rehab, some people saw me around so much that they thought
that I worked there! I have a nuero that I want to talk to (he handled
my late husbands epilepsy) to see if he has any ideas for something to
help the pain in my legs. Joellen