RE: cold sensitivity/pain

Lindstrom, Ann (annlindstrom(AT)lucent.com)
Wed, 18 Nov 1998 08:25:27 -0800

Jenny - Its awful that we have to rely on the meds, but on the other hand I
am very greatful that we have them. I don't beleive that I could be nearly
as functional as I am without them. My numbness/tingling/pain never go away
completely either. I am best if I have had enough sleep, and if I am very
inactive. I still work, go shopping, have fun with friends, etc, but I know
I am going to pay a price if I overdo it. One thing that seems to help is
to take one Tylenol PM at bedtime occaisonally (maybe once every week or
so). The next day I feel better. I think its because my sleep is
uninterupted, and I don't seem to move much during the night. Anyway, its a
trade off for each of us. Ann

> ----------
> From: Jennapause(AT)aol.com[SMTP:Jennapause(AT)aol.com]
> Sent: Tuesday, November 17, 1998 8:18 PM
> To: twinkie(AT)javanet.com tmic-list(AT)eskimo.com
> Subject: Re: cold sensitivity/pain
>
> Hi Cheryl,
>
> I think you hit a few nerves when you said that the neurontin was helping.
> It
> seems like my sytoms get really bad in the winter as well.
> The pain gets unbearable. I think it is awful that we have to rely on the
> medicine in order to feel like we can get through the day. It is always
> ironic to me, I dont know how everyone else feels, but as soon as we
> complain
> about the this or that, the first reaction to that is to increase the
> meds, or
> try something else.
> I too, have weaned myself off of Baclofen, and Zanaflex. and I am now
> currently taking the Neurontin, 300mgs three times a day or as needed.
> I also am taking cylert for fatigue which has helped. The thing that
> concerns
> me is the pain, does not go away, it is there when I wake, it is there
> when I
> go to bed, It has gotten really severe. Does anyone have any
> suggestions????????
> My doctor will be calling me in the morning as I have called him as well.
> My legs get icy cold, and burn, but the odd thing is that they feel as
> though
> something is eating me away inside, from my toes all the way up to and
> past my
> hips, and around the back/
> I dont feel I need the baclofen, or Zanaflex any more, but I do take one
> Zanaflex at bedtime so that I dont shake the bed all night!!! I jump and
> my
> nerves in my body, just seem to go hay wire.
> I am only 36 Cheryl, so I dont think it is your age that is catching up
> with
> you, just another complication of the symtoms.
> Any advise you all could share I really would appreciate, I really dont
> know
> what to do.
>
> Thanks
> Love to you all
> Jenny
>
>