I think you hit a few nerves when you said that the neurontin was helping. It
seems like my sytoms get really bad in the winter as well.
The pain gets unbearable. I think it is awful that we have to rely on the
medicine in order to feel like we can get through the day. It is always
ironic to me, I dont know how everyone else feels, but as soon as we complain
about the this or that, the first reaction to that is to increase the meds, or
try something else.
I too, have weaned myself off of Baclofen, and Zanaflex. and I am now
currently taking the Neurontin, 300mgs three times a day or as needed.
I also am taking cylert for fatigue which has helped. The thing that concerns
me is the pain, does not go away, it is there when I wake, it is there when I
go to bed, It has gotten really severe. Does anyone have any
suggestions????????
My doctor will be calling me in the morning as I have called him as well.
My legs get icy cold, and burn, but the odd thing is that they feel as though
something is eating me away inside, from my toes all the way up to and past my
hips, and around the back/
I dont feel I need the baclofen, or Zanaflex any more, but I do take one
Zanaflex at bedtime so that I dont shake the bed all night!!! I jump and my
nerves in my body, just seem to go hay wire.
I am only 36 Cheryl, so I dont think it is your age that is catching up with
you, just another complication of the symtoms.
Any advise you all could share I really would appreciate, I really dont know
what to do.
Thanks
Love to you all
Jenny