Maureen, Hello. I am so sorry for all your years of suffering through this alone. I can not imagine what I would be like if I did not find this group to help me understand my son's disease. I have had the best information I could possibly want, from those on the list that have been there. And even with all of this, sometimes I feel very alone...because my friends and co-workers don;t have the foggiest idea of what my son is going through. I am a completely different person than I was before this disease hit our family. I only hope that now that you have found this group you can take some of the burden from yourself and give it to us...we are here to listen. Judi
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> From: Maureen Wroblewski <wroblews(AT)frontiernet.net>
> To: JHarper33(AT)aol.com
> Cc: Silvercaul(AT)aol.com; tmic-list(AT)eskimo.com
> Subject: Re: family support
> Date: Saturday, November 14, 1998 6:49 PM
>
> Hi "guys":
> Just reading through all your posts tonight I find myself so very
> jealous of all of you who have just been diagnosed with TM and have
> found this listening, responding, real-live source already! And angry
> sometimes too, because of all the years I 'crawled' through one day at a
> time for nearly thirty years before all of THIS was even possible. I
> remember coming home from the hospital after three months away from
> parents and four brothers and sisters and I could just crawl around on
> the floor after complete paralysis from the waist down, and I never even
> heard of a support group! There was no offer of support. True, I was
> only fifteen at the time and it was different then. I was dependent upon
> my parents and what they knew. I suppose they assumed that if I didn't
> ask for help, I didn't need any. We didn't talk very much about it and
> when I did break down they just wanted to "fix" it quick. No one
> guessed the half of it. I guess I just wanted to tell you all how
> blessed you are to have each other now, before some of the hidden damage
> that FOLLOWS TM begins to develop. Talk to everyone that is affected by
> your TM and tell them what's going on in you if they are willing. I'm
> not sure how I would have reacted to this way back then, but today I am
> convinced that I would have wanted them to try.
> I gain so much by listening in to all of your thoughts, but sometimes I
> just want to scream that it's too late. I've come to know all of you
> too late. Still I realize I can't go back and do it over so here I am.
>
> Maureen
>