As for the possible MS, I've been told the same thing. Go on with your
life. But keep in touch with your neurologist if you have more symptoms.
If they do diagnose definite MS, there are drugs available that slow the
progression of the disease and decrease the number of exacerbations people
have. If you have MS, you'll want to start one of these drugs right away.
Susan
>I see there is already and Ann here so I will be Annie.
>
>I am 28 and married with a 3 1/2 yr old son (Ann - my son is Nicholas, too).
>I live in South Texas.
>
>In January of this year I started having numbness in both hands that just
>wouldn't go away. I went to my GP who sent me for an MRI of the brain. At
>the very bottum of that MRI pic they thought they saw something so I had the
>spinal MRI and I had a lesion (don't remember T1?). I went to a neurologist
>who sent me for a spinal tap and had his assistant call me 3 days later to
>tell me I had MS. I was devestated. My dad was in the hospital and had been
>off and on since January (cancer) and now this was happening.
>
>Well, soon after that, I started having heavy vibrating sensations in both
>legs whenever I moved a certain way. Since I hated the 1st neurologist (the
>reasons would make this letter even longer than it already will be) I sought
>another. He said I didn't have MS since there was only 1 lesion. The numbers
>in my spinal fluid were what the 1st neuro based the dx on and that was WRONG.
>Well, this second neurologist moved to Kentucky so I had to find another. I
>love the one I found!! She is very positive but also very realistic. She says
>my chances of developing MS are greater because of the numbers in my spinal
>fluid (proteins??) but that there is almost as great a chance I will not.
>
>I am experiencing less and less numbness - it just flairs up some times - and
>no tingling/vibrations in my legs. I have horrible fatigue sometimes, though.
>People at work have an extremely hard time understanding since I look "well."
>I noticed someone else had posted about that as well. I occasionally have a
>hard time walking normally but my mom says I've always been a clutz! It is
>just worse lately, e
>especially when I'm tired.
>
>I am on Cylert for the fatigue and it helps. I've missed only 2 days of work
>in 1 month vs 1 every other week or so.
>
>
>*********:::::::::My questions:::::***********
>
>1. Anyone on Cylert?
>
>2. FMLA - I have it but need more info on it
>
>3. Why have I been told my MS chances are higher but from the postings I
>don't see
> much about that?
>
>4. Anyone else miss out on fun stuff because you are afraid it will wear you
>out and make you miss work? I am afraid to do laundry during the week,
>go to dinner, etc. I pretty much come home and do nothing so I can make it
>to work.
>
>I am looking forward to getting to know you all. I'll try to keep future
>letters shorter. I am a big-mouth, though!
>
>What is this "survey" I'm hearing about?
>
>Annie in South Texas
>
>
>