I am 30 and newly single with a 5 yr old son and I live in S Texas.
In January of 1998 I started having numbness in both hands that just
wouldn't go away. I went to my GP who sent me for an MRI of the brain. At
the very bottum of that MRI pic they thought they saw something so I had the
spinal MRI and I had a lesion (don't remember T1?). I went to a neurologist
who sent me for a spinal tap and had his assistant call me 3 days later to
tell me I had MS. I was devestated. My dad was in the hospital and had been
off and on since January (cancer) and now this was happening.
Well, soon after that, I started having heavy vibrating sensations in both
legs whenever I moved a certain way. Since I hated the 1st neurologist (the
reasons would make this letter even longer than it already will be) I sought
another. He said I didn't have MS since there was only 1 lesion. The numbers
in my spinal fluid were what the 1st neuro based the dx on and that was WRONG.
Well, this second neurologist moved to Kentucky so I had to find another. I
love the one I found!! She is very positive but also very realistic. She says
my chances of developing MS are greater because of the numbers in my spinal
fluid (proteins??) but that there is almost as great a chance I will not.
I am experiencing less and less numbness - it just flairs up some times - and
no tingling/vibrations in my legs. I have horrible fatigue sometimes, though.
People at work have an extremely hard time understanding since I look "well."
I noticed someone else had posted about that as well. I occasionally have a
hard time walking normally but my mom says I've always been a clutz! It is
just worse lately, e
especially when I'm tired.
I am on Cylert for the fatigue and it helps. I am on prednisone now, too -
highest dosage I've had before and I'm sure I'll weigh 300 pounds by the time
I'm off them.
I was doing really well for over a year but now my left hand is really bad
again (I know, it could be worse) and my left leg and right hand are trying
to get in on the act and I have the "banding" but I hope it will all go away
as it has before.
I am most interested in people who have been told TM and the MS or vise
versa.