You need to pay some attention to the fatique - I find its like someone
pulled the plug on my energy when I get tired - I'm missing that second
wind. We have to find ways to let our bodies recharge. I know thats hard
with two small children at home.
The TM can wax and wane, getting better, then getting worse again. I
haven't heard much about an occurance in a different area of the spine with
a TM diagnosis. However, even though they ruled out MS for me when I was
first diagnosed, they are now suspecting it again. I guess the deal is
learning how to live with some uncertainty. Hang in there and keep- us
posted - Ann
> ----------
> From: Silvercaul(AT)aol.com[SMTP:Silvercaul(AT)aol.com]
> Sent: Monday, November 09, 1998 6:50 PM
> To: tmic-list(AT)eskimo.com
> Subject: Diagnosed with TM in June
>
> Hi, My name is Bonnie. I am 33 years old. I came down with TM Memorial
> Day
> weekend of this year. 5 days after being admitted to the hospital I was
> diagnosed with TM caused by a virus. An MRI and spinal tap were done. I
> have
> a lesion at the T-9-T10 portion of my spine. I was treated with
> Solumedrol.
> Apparently, I am very lucky, although sometimes I do not feel so lucky. I
> am
> about 80% recovered. I still have some loss of feeling in both my legs.
> I
> find when I exercise my muscles quiver like violin strings. My lower
> right
> leg also feels extremely stiff at times. I am also back at work full-time
> (I
> am a high school history teacher). I find when I get home I am thoroughly
> exhausted. This is difficult, because I have a 3 1/2 year old and an 18
> month
> old at home. I am also at a new job so I am not yet tenured.
>
> My doctors in the hospital were basically very good. Although, they could
> not
> give me answers to many questions. Maybe some of you have better answers
> out
> there.
> Can TM return? I have become crazy worrying about every little cough and
> sniffle. I worry that I am going to loose feeling in my legs again or
> another
> lesion will develop somewhere else along my spine. (MS was basically ruled
> out) When do I know that I am as recovered as I am going to get? Does the
> exhaustion ever abate. I know these questions are a bit simplistic, since
> some of you out there have not made as good a recovery as me, but I would
> appreciate your help.
>
> I am looking forward to being in touch. I find that people just do not
> understand how I feel or what I am going through. This is especially true
> because I am walking quite well.
>
> I hope to hear from some of you guys out there.
>
>