RE: first timer

Lindstrom, Ann (annlindstrom(AT)lucent.com)
Thu, 5 Nov 1998 09:01:36 -0800

Jaid - Welcome to a great group - you'll get lots of good info and support
here. A lot of us are on the cusp between MS and TM. I have been doing
this for more than three years, and I will be having yet another MRI soon to
look at my brain to see if there is an active lesion there. I have started
telling people who do not know me well that my problem is MS. Its easier
for people to understand and takes less explanation on my part. Good luck
and keep us posted...Ann

> ----------
> From: STEVEN MARCOLINI[SMTP:jaider(AT)erols.com]
> Sent: Wednesday, November 04, 1998 6:05 PM
> To: tmic-list(AT)eskimo.com
> Subject: first timer
>
> This is my first submission, so I hope I'm soing it right. I recieved a
> diagnosis of transverse myelitis on 10/12/98. In september, my feet
> started
> to get numb, and by two days, the numbness(pins and needles) had moved up
> to
> my waist. My primary sent me to a neurologist, who then put me through
> all
> the tests - MRI, evoked potentials, lumbar puncture, etc. He told me when
> my MRI came back, that it showed an area at t-3/4 and he would suspect MS,
> but needed to rule out other fun stuff (tumor, syphillis, etc.). This was
> quite a blow, as you all know. My symptoms are relatively mild, with no
> motor weakness, so I feel lucky in a way. Since my brain MRI and evoked
> potentials were negative, and this is my first onset, he says at this time
> they will call it TM.
>
> The things I am confused about are, there seemed to be no way my doctor
> could tell me for certain if this is TM or MS (even though he did give me
> a
> diagnosis). Could anyone explain it to me better? Also, I have a 6 month
> old daughter and was hoping to have one more child. Has anyone heard
> about
> pregnancy effects on TM? My Doc says it is uncertain whether women
> improve
> after pregnancy or go on to MS. Any help appreciated. Best wishes, Jaid
>
>