I can honestly say that I was never really paralyzed. I was immobilized the
first couple of weeks due to muscle weakness and loss of sensation.
When I saw the new neurologist recently he stated that I indeed have a TM
and that he couldn't believe that a biopsy was even considered. He showed
me the involved area on the MRI and said that it is identical to a MS
lesion which is similar to a TM lesion. He also told me that 50% of all TM
cases go on to have MS.
I agree that the tingling sensations are extremely uncomfortable. We
experience sensations (all unpleasant) that we never felt before this
happened. I was put back on Neurontin for my "spine attacks". I hate
Neurontin. It makes me feel dizzy. The usual dose is 300mg t.i.d. but I
have started with one dose at bedtime to try to avoid the side effects.
Then I hope to increase. Has anyone tried Neurontin for the electric shocks?
I recently met a young man with a chronic myelitis who did have a spinal
biopsy due to a very large area of involvement on his spine. He said he was
very relieved that he doesn't have a tumor. He's very uncomfortable since
he has not feelings in his hands or from his neck to his feet. He said he
cannot feel the bottom of his feet. He has been this way for nine months.
He is on steroids constantly because as soon as he's off them his
inflammation rebounds. I considered myself lucky after meeting him. He has
returned to work since his job is sedentary and he only has to do a little
writing. I have not returned to work yet. I can't imagine being able to do
my job right now. I NEED MY HANDS TO FEEL!!
Has anyone run into the problem of being a two income family and the stress
of not having short term disability?
Karen