Re: ATM

10mtside(AT)postoffice.ptd.net
Fri, 20 Dec 1996 18:57:35 -0800

>I am a 42 year old female diagnosed on October 20 with acute transverse
>myelitis. I was improving clinically and had repeat MRI's of the spine
>which just came back as showing increased inflammation and spinal cord
>swelling at the same area. I am now going to a specialist at the Univer. of
>PA. for a possible spinal biopsy. Has anyone else had repeat MRIs which
>showed anything?

I was diagnosed in July 1995 after rapid 48 hour onset. My MRI said that
the entire
spinal cord was involved from the conus to C-2. I was paralyzed from T-2 or
so down.
Without going into my whole story, which has been posted here before, I made
a decent recovery as things go, as I can walk and drive. My legs are still
stiff and mostly numb. I have had no reoccurences and feel I am still
improving very slowly. I never had but One MRI. I was treated at Thomas
Jefferson U. Hosp in Philly. After I was
stabilized with steroids, including a tapered dose of prednisone, the
neurologists
basically handed me off to the rehab doctors. I've seen the neurologist
once since getting out of the hospitial.

If you are a regular reader here you will reach this conclusion:
Doctors are
nearly totally in the dark when it comes to ATM. You sort of have to be
your own doctor, and come to your own conclusions.

Happy Holidays to all!!!

Your Friend ---- jim f