Re: There is no such thing as Transverse Myelitis!

Beth West (bethw(AT)users.wizzards.net)
Sat, 16 Nov 1996 00:18:23 -0800

10mtside(AT)postoffice.ptd.net wrote:
>
> Bernie said:
> >My theory is that a virus takes hold in the area of the spinal cord where
> there is a
> >structural problem (slipped disc maybe or something like that). The immune
> system
> >responds and damages the myelin. The trauma question which was previously
> making the
> >rounds supports my own situation. During the diagnosis process in the
> hospital, I was
> >informed that there was a slight bulge in the disc at T5 (possibly
> requiring surgery).
> >This is also the area of the suspected demyelination. Two days after I was
> admitted to
> >this hospital, another man was admitted. He also was diagnosed with TM, had a
> >structural problem at T8 or T9 (also possibly requiring surgery). We were
> both
> >transferred to another hospital for second opinions concerning the surgery,
> and for
> >subsequent treatment and further diagnoses if surgery was not warranted
> (the hospital
>
> This is a very interesting theory. I was diagnosed with a herniated
> cervical disc about six months before onset of TM symptoms. But how do you
> explain the
> huge number of people with herniated, bulging, slipped discs etc, and the
> apparently minute number diagnosed with Transverse Myelitis?
> jim f

Hello,
I think this conversation is really helpful! Add me to the list of a
'clean MRI of the spine but a compromised immune system, atypical Lupus.
Also, looks like I will be getting IVgamma next week, I saw someone
mentioned this was it helpful? Also, I had a weird rash, small on my
right wrist, same side of my body as all the other problems, all during
my attack, now that I am somewhat better the rash is completely gone,
anyone else? Thanks, Beth