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Mykella Ribble wrote:
>
> Hello,
>
> I hope this is appropriate but I just joined this list and wanted to
> introduce myself. I am 23 years old (female) and was struck suddenly
> with TM in 1995. I was just recently diagnosed b(misdiagnosed since
> 95). I have so very many questions and am relieved to know about a list
> such as this.
> I have been in a wheelchair since sep. 1995. I have occasional problems
> with my hands, coordination, speech. My neuro. thinks I may have MS
> also, although all tests for MS have so far come back negative. I just
> recently became completely unable to urinate on my own and am learning
> to self cath.
> One specific question I have regards a new symptoms that a doctor is
> "blaming" on TM. For about a month I have had abdominal pain,
> vomitting, and no appetite. I have had many tests and the
> gastroenterologist now says he thinks it is a result of the TM affecting
> my digestive system. This sounds "odd" to me. I was wondering if
> anyone else knows if this is possible, or maybe I should keep pushing
> for him to find some other reason.
>
> Once again, I feel so grateful to you all. Thank you for being there,
>
> MykellaHi Mykella, Joellen here. I too experienced a lack of appatite
initially and lost around 100 LBs (unfortunately I gained much of that
back last winter!) sometimes if you are having problems with
constipation you can have lack of appetite, nausea, and vomiting. I
also have diabetes so sometimes when I eat the wrong things I get those
symtoms and can go from one extreme (constipated) to the other
(ick!). Personally I almost wish I had the lack of appetite back so I
could lose that weight again! Oh well I guess I'll always be "fluffy"!
Joellen
Hi Mykella,
Welcome aboard! Glad you found us. I am much like JoEllen in that I lost a lot
of weight and had some tummy probs. It was originally thought to have been
from some anti-seizure meds I was on though. I did get taken off of those and
continued to loose the weight and then got the onset of the TM. I still get
nauseous (sp) at times but I don't know what to contribute it to. Anti-seizure
meds, TM or what. I don't have much of an appetite anymore but I am still
early in my recovery too.
Probably not much help, but just wanted to share and say welcome!
Maria in Tonawanda