I hope this is appropriate but I just joined this list and wanted to
introduce myself. I am 23 years old (female) and was struck suddenly
with TM in 1995. I was just recently diagnosed b(misdiagnosed since
95). I have so very many questions and am relieved to know about a list
such as this.
I have been in a wheelchair since sep. 1995. I have occasional problems
with my hands, coordination, speech. My neuro. thinks I may have MS
also, although all tests for MS have so far come back negative. I just
recently became completely unable to urinate on my own and am learning
to self cath.
One specific question I have regards a new symptoms that a doctor is
"blaming" on TM. For about a month I have had abdominal pain,
vomitting, and no appetite. I have had many tests and the
gastroenterologist now says he thinks it is a result of the TM affecting
my digestive system. This sounds "odd" to me. I was wondering if
anyone else knows if this is possible, or maybe I should keep pushing
for him to find some other reason.
Once again, I feel so grateful to you all. Thank you for being there,
Mykella