Gosh, I'm sorry that you are in limbo. Just wanted to say Bill had
that for a while, too, well....still has it really. He started with the
symptoms in 1971....and not in a wheelchair till 85. During that time,
he could walk up till about 81 with minimal problems. .......Anyway, in
1996, for a while, he had Home Health and one day the nurse walked in and
said he "probably had MS" even though the diagnosis given in 1994 was
"TM".....but no Doctor ever told him he had MS and it never showed up on
the paper work. I don't know that he ever felt fear as such, but a lot
of anger. For years his diagnosis only said "etiology unknown." He
always felt that the VA Hospital was just pushing him aside.
About the Neurontin, he has taken a little bit of it since 1994. I
think at first he was a part of a study and then later it was released to
the public (the gabapentins).....
Anyway, he only takes 300's about once or twice a day. He found that he
got an awful lot of side effects on a stronger dose--even collapsed once.
He blames many of his problems on that medicine, yet he continues to
take it so it must be helping him out with something--he claims it helps
him with stomach pain and some muscle cramps. Anyway, he didn't do well
on the strong dose.
Right now, Bill also has prostate cancer. He's 63 but looks and acts
more like 55, so it's pretty hard to take having all of that. With the
prostate cancer part, they again are rushing him through, spending about
5 minutes telling him certain treatments are not available to
him,,.....boom, boom, boom, take this treatment and then go home as
though it is a trivial matter.......oh well, I hope you do well in the
future, and I know you will love this group of people! They have been a
great help, and you can learn so much from all the posts.
Barbara D. in Louisville
caregiver to Bill
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