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Hello all:
I'm not sure where the information began regarding
TM and surgery but based on my own experience I would say
that it is inaccurate. As many of you know, I lost both
legs in 1996, 15 years after my TM diagnosis. It took
10 separate surgeries to remove both legs. If the rumor
was true, I'd have one H*** of a case of TM,
Just thought I'd share this for what it is worth.
Doc
-----Original Message-----
From: Errol White <eamjwhite(AT)bigpond.com>
To: W2SMITH(AT)aol.com <W2SMITH(AT)aol.com>; annlindstrom(AT)lucent.com =
<annlindstrom(AT)lucent.com>; RevAdelle(AT)aol.com <RevAdelle(AT)aol.com>
Cc: tmic-list(AT)eskimo.com <tmic-list(AT)eskimo.com>
Date: Wednesday, September 09, 1998 7:18 AM
Subject: Re: Update - No neck surgery
=20
=20
Upon reading your post, I was surprised to see your comment =
regarding
problems with any surgery bringing on TM again. I have been =
consulting a
ortho specialist here in Brisbane Australia who is suggesting I =
should habe
ligaments stretched and modified to stop the hyper extension in my =
right leg
and foot. Gunny also contacted me warning re surgery so thanks to =
both for
the warnings. I was wondering if anyone has had this type of =
lengthening
done?
Regards, Errol in Australia.
-----Original Message-----
From: W2SMITH(AT)aol.com <W2SMITH(AT)aol.com>
To: annlindstrom(AT)lucent.com <annlindstrom(AT)lucent.com>; =
RevAdelle(AT)aol.com
<RevAdelle(AT)aol.com>; eamjwhite(AT)bigpond.com <eamjwhite(AT)bigpond.com>
Cc: tmic-list(AT)eskimo.com <tmic-list(AT)eskimo.com>
Date: Tuesday, September 08, 1998 7:13 AM
Subject: Re: Update - No neck surgery
=20
=20
>Ann:-
>
>I am quite interested in your recent posting about your C5-6 disc =
problem
and
>biopsy to rule out cancer.
>
>I have been going through a miserable mess the last three months =
with a
>possible similar problem. I had an MRI three months ago because of =
neck
pain
>which was causing headaches, back pain, and numbness in my arm and =
fingers.
>The MRI showed four herniated disc--C4, C5, C6, and C7. It also =
was read
by
>the radiologist as possibly metastatic disease. Needless to say, =
I've had
>many more tests since then. What keeps showing up is a darkened =
area on
C5.
>They are not sure if this is possibly lymphoma, arthritis, =
degenerative
>disease, or a marrow problem.
>
>I've met with two different surgeons at Jefferson who feel I can't =
ignore
>this. A biopsy is recommended where they will enter through the =
front of
my
>neck and go to my vertebrae to take a sample of the C5 disc.
>
>I'm set tomorrow to go in for pre-admission testing at Jefferson =
Hospital.
>One appt is with an Internist to verify me capable of withstanding =
the
>surgery; one appt with the Ear, Nose and Throat Specialist (who =
will asst);
>and the other pre-admission stuff--EKG, x-rays, blood, urine tests. =
As of
>today, the biopsy is set for September 22.
>
>Another consideration here is the surgery itself. I was told nine =
years
ago
>that any surgery has the possibility of triggering another attack =
of TM.
Both
>of the surgeons I met with last week also told me this. So, I'm =
once again
>going back on steroids before and after the surgery to help avoid =
this from
>happening.
>
>Now if all this on top of TM weren't enough, on Saturday I started =
having
>blood in my urine along with severe dizzy spells. I've called my =
primary
care
>doctor this morning and I'm waiting for her to call back. What =
next!
>
>I would greatly appreciate any info you can give me on what was =
done to you
>during your ordeal. In a way, they seem similar. Thanks.
>
>PatS
>
=20
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