Re: letter I wrote earlier
Jo Ellen Finkelstein (ghellen(AT)ninenet.com)
Fri, 04 Sep 1998 20:35:26 -0500
RevAdelle(AT)aol.com wrote:
>
> I have spent this past week reading all of your messages. Today I go for a
> total MRI the suspicion is transverse myelitis. I don't know a whole lot
> about this disease I only know how much pain I have been in for years without
> any Doctor being able to figure out what is wrong. I fall a lot because I go
> to get up and my legs are "gone."
> I stumble into walls and such.
> Thank you all for being there. If anyone can give me more info I would
> appreciate it.
> A chat room would be wonderful for people like me who have so many questions.
> I would appreciate you answering me back. Are there such things as local
> "physical" support groups?
> AdelleHi Rev. Adelle, Joellen here. Sorry I took so long to answer. I take
Beclofen for the spasms in my legs, many of the people here take
nuerontin for the pain, it didn't seem to work for me but that may have
been because I was on a very low dose. For right now I try to ignore
the burning and pain in my legs (only with God's help) I have nothing
but admiration for someone so dedicated to their flock that they are
determined to continue with this affliction. Many hospitals have
support groups for those dealing with handicaps, and some larger cities
have groups that deal with handicaps (support groups, advocacy groups
etc) I don't know where you are located so can't tell if these would be
available for you. Thisgroup is a great resource to fall back on, we've
all been where you are (so to speak) let us know how the MRI goes.
Joellen