<< I have spent this past week reading all of your messages. Today I go for a
total MRI the suspicion is transverse myelitis. I don't know a whole lot
about this disease I only know how much pain I have been in for years without
any Doctor being able to figure out what is wrong. I fall a lot because I go
to get up and my legs are "gone."
I stumble into walls and such.
Thank you all for being there. If anyone can give me more info I would
appreciate it.
A chat room would be wonderful for people like me who have so many questions.
I would appreciate you answering me back. Are there such things as local
"physical" support groups?
Adelle >>
Hi Rev!!!
Isn't it interesting to read the stories of others experiences? Sometimes
their experiences are much like your own.... I, like you, have experienced
pain for years, and sometimes get up and my legs are "gone"....Right before
this happens, sometimes my fingers tingle, then deep inside my legs, I
experience this strange electrical sensation, and boom... my legs are gone.
I call that "losing my legs"... When most people hear me say this, they are
horrified. "How could you lose your legs? They are still attached... People
without their legs, now THEY have lost their legs." I hear this most often.
But for people like you and I, we do "lose our legs" in a general sense of the
word. I can only speak for myself, but TM has changed my life, and from what
I have experienced here on the list, all our lives have changed in a BIG
way...Somehow we learn to adapt...and move forward.
I hope you enjoy the company of the others here on this list as much as I
do... I feel as if I have found a home that I can relax in, and share my good
stories, and also my horror stories---without judgement.
Take your shoes off, kick back.. and relax... the people here are WONDERFUL!!!
Welcome!
Janie