A PLEA ! !

Doc (doc09(AT)sprintmail.com)
Tue, 1 Sep 1998 23:06:16 -0400

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Hello to all:
=20
At the encouragement of someone using the tmic,
I posted a Questionnaire on August 10th. I simply
asked that those on tmic take a moment and fill
it out. Since the posting, I have received ONLY
34 RESPONSES. During this same period, in
addition to the 34, there were 53 Tm'ers who
made comments regarding constipation, sex
parking, wheel chair, bath chairs and misc... medical=20
problems. Well let's see that makes 87 who have
been active on the board. I have been told that
between those receiving the daily posts and those
receiving only the digest (some folks do get both)
there are more than 200 subscribed to the tmic.
=20
In the beginning, many of us were frantic trying to
find out about TM and about Doctors, therapists,
hospitals etc. Some turned to their computer, others
called TMA or NORD asking for information on TM.
I have been asked by TMA to provide the physician's
provided by the TMIC folks so that when a desperate
person calls TMA or NORD they can provide information
on Doctors etc. I don't mean to preach but I know how
much I appreciate all of you and the information I receive
even after 17 years of being a TM survivor. So please
take a moment and complete the questionnaire, it is
atleast as important as constipation, sex, parking,
wheelchairs etc.
=20
Doc
=20
=20
PS. If I know there are 53 who have not responded, I
know who hasn't. <g> If you don't respond I'm gonna=20
tell on you to your mom & dad, kids or whoever I can
find. <lol> ; - )

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Hello to all:
 
At the encouragement of someone using the=20 tmic,
I posted a Questionnaire on August 10th. I=20 simply
asked that those on tmic take a moment and=20 fill
it out. Since the posting, I have received=20 ONLY
34 RESPONSES. During this = same period,=20 in
addition to the 34, there were = 53=20 Tm'ers who
made comments regarding constipation, = sex
parking, wheel chair, bath chairs and misc... = medical=20
problems. Well let's see that makes = 87=20 who have
been active on the board. I have been told=20 that
between those receiving the daily posts and=20 those
receiving only the digest (some folks do get=20 both)
there are more than 200 = subscribed to=20 the tmic.
 
In the beginning, many of us were frantic = trying=20 to
find out about TM and about Doctors,=20 therapists,
hospitals etc. Some turned to their computer, = others
called TMA or NORD asking for information on=20 TM.
I have been asked by TMA to provide the=20 physician's
provided by the TMIC folks so that when a=20 desperate
person calls TMA or NORD they can provide=20 information
on Doctors etc. I don't mean to preach but I = know=20 how
much I appreciate all of you and the = information I=20 receive
even after 17 years of being a TM survivor. = So=20 please
take a moment and complete the questionnaire, = it=20 is
atleast as important as constipation, sex,=20 parking,
wheelchairs etc.
 
Doc
 
 
PS. If I know there are 53 who have not = responded,=20 I
       know who = hasn't.=20 <g>  If you don't respond I'm gonna
       tell on = you to=20 your mom & dad, kids or whoever I can
       = find.  =20 <lol>  ; - )
------=_NextPart_001_004A_01BDD5FD.1F95E000-- ------=_NextPart_000_0049_01BDD5FD.1F95E000 Content-Type: text/plain; name="Questionnaire.txt" Content-Transfer-Encoding: quoted-printable Content-Disposition: attachment; filename="Questionnaire.txt" I will collate this data and I will not release any of it on any = individual unless given permission. The geography questions are related = to MS research. I would ask that everyone, including lurkers, just readers and visitors, to complete the questionnaire if it applies to you, a family member or friend with a Dx of Transverse Myelitis (TM). Hopefully we can make a difference. 1. GENDER: 2. DATE OF Dx: LOCATION: (City,State) AGE AT Dx: LOCATION: (City, State) CURRENT AGE: LOCATION: (City, State) BIRTH LOCATION:(City,State) UNUSUAL CIRCUMSTANCES: (Lived one place Dx'd in another location.. (There were a couple of you who were on vacation or business). 3. CURRENT MEDICATIONS: (Please List) 4. MEDICATIONS TRIED BUT DID NOT WORK FOR YOU.(Please List) 5. IF YOU FEEL THAT YOUR PHYSICIAN/NEUROLOGIST IS EXPERIENCED WITH TM (or atleast willing to learn) PLEASE LIST HIM AS SOMEONE YOU WOULD RECOMMEND TO OTHER: NAME: SPECIALTY: HOSPITAL AFFILIATION: CITY, STATE TELEPHONE: 6. IF YOU HAVE BEEN TREATED BY A PHYSICIAN/NEUROLOGIST THAT SHOULD BE AVOIDED AT ALL COSTS BY THOSE WITH TM: NAME: SPECIALTY: HOSPITAL AFFILIATION: CITY, STATE I hope this information will aide many. Doc ------=_NextPart_000_0049_01BDD5FD.1F95E000--