Re: TM
Jo Ellen Finkelstein (ghellen(AT)ninenet.com)
Mon, 31 Aug 1998 21:38:25 -0500
Barbara L wrote:
>
> Hey everyone! I just sorta started finding ppl with my rare
> disease/disorder/virus (whatever you wanna call it). I call it a pain in
> the butt. Anyway, I'm a 16yr. old female from Texas. I was diagnosed with
> TM when I was 2. I have feeling all over my body and have never experienced
> any pain (only when I stretch). I'm paralized from the shoulders down and
> have learned to type/write or whatever with my mouth. My best friend found
> a message group on here with ppl with TM which raised my spirits to find
> more. So here I am. My doctors have been real fague about anything about
> TM. They have given me absolutely no info. at all. Of course thats doctors
> for ya. If anyone has info. or wants to share there stories with me I would
> love to read them.
>
> BarbaraHi Barbara, Joellen here. Welcome to our list, you've been dealling
with this stuff longer than a lot of us but we've got lots of stories to
tell. I don't remember the address but there is an archive of memeber
stories available. I think we've all told our stories at one point or
another! Joellen