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Hi,
My step-son was diganosed with TM 3 years ago. This is his sad story.
Abraham was sitting on the floor playing nintendo while visiting his mother
(he lives with his father and I). He got up to get a bowl of ice cream.
Abraham deceided he didn't want ice cream so he went back and sat down to
watch his brother play the game. About 5 minutes later he tried to stand and
discovered that he could not feel his legs any more. He told the babysitter
(his mother had gone to work and left him with a sitter instead of bringing
him home) that he couldn't feel his legs. The sitter took him to his mom's
work where he was sat on a couch. About 2 hours later she told him to get up
they were leaving. He told her, "Mom I told you I can't feel my legs. I can't
walk." That is when she took him to the hospital. He broke out in chicken pox
during the night and that is when they said TM. It kept spreading until he was
paralized to his waist. Then for whatever reason it stopped. He was never
given stroids or other medicine to reverse this effect. He got a little
better!
, now he only cannot feel his legs to his hips. After reading about these
other cases I am begining to wonder if he had the wrong doctors?
Elizabeth Guerrero
frog37(AT)usa.net
>>
Hello Elizabeth,
TM can hit a person rapidly and with disasterous effects. Steroids could have
been used to suppress the immune system and fight inflammation. His body must
have stopped the progress of tm by itself. I don't think there is any
medicines to reverse the effect of tm. There are some meds to help reduce the
symptoms. Therapy is the most important thing to be doing now along with
giving your step-son much needed support. Keep his moral high and move all
body parts to preserve the muscles. There are more things that he could be
doing and I'm sure we will get some more input from our other fine group. W e
shouldn't concern ourselves with the doctors of three years ago. We need to
think about doing all we can do now and in the future. I'm glad you wrote to
us and we want to have all your questions. Feel free to ask and we'll try to
answer.
best regards,
Phil