> I wonder, so is this the nature of TM? Do the temperature changes cause the
> CNS to swell and go down.. swell and go down?...Or in others, is it just
> their
> muscles? Does that happen to all of us? Could it be that this 'climate
> thing' is a part of TM all the time and not considered a true reoccurance?
> Now, you can tell I am a total newbie...I still have sooooo many questions
> about this thing we all have.... Until I found this list, I was the only
one
> I
> knew with TM....and answers were hard to come by...(even for the
doctors....)
>
> I know the doctors labeled my TM 'reoccuring' because the spinal swelling
> would go down...partial movement and feeling would return... then something
> inside (my environment/or body) would trigger the CNS to swell again....and
> that was it.. back to square one...Maybe this really isn't a
reoccurance....
> Do
> many others experience this same thing? This is where research and
> information would be soooooo valuable to us....THANK GOODNESS for this
> list!!!!! It is a true blessing from above!
>
> Janie
>
I know certain circumstances cause what I call a flare-up of symptoms for me.
Coldness is one of these circumstances (overall cold temperatures or even if
the car air conditioner is blowing directly on my TM-affected arm); fatigue,
lack of sleep,and stress are other things that cause flare-ups. I don't know
whether it actually causes swelling to re-occur on the spinal cord, and I've
never gotten as bad as I was when first afflicted with TM. What my neurologist
told me was that the TM affected my nervous system, making it more sensitive
to stimuli. That appears to be true in my case. For you, though, it sounds as
though you may have actually had many different individual incidences of TM
and swelling.
I mentioned stress -- it is funny how sometime I can handle what would be
major stress okay, but then fall apart under relatively minor stress. I don't
know -- I think even how the body responds to stress is just a part of the
overall big picture, as in: TM affects (even causes, sometimes) stress, stress
affects TM symptoms, how rested you are affects how stressed out you feel,
etc, etc. There are so many pieces to the puzzle.
Barbara H.