> Hello All:
>
> Doc is in need of some help. To make a
> short story long it (my problem) began on
> my birthday in April. A problem with who,
> with what you ask? (Gunny's already guessed)
> The Veteran's Administration of course and
> ultimately the Chief of Medicine. The original
> problem was that they discontinued my homemaker
> services because my disabilities, TM and bilateral
> leg amputations, were NSC (Non Service Connected)
>
> yadayadayadayada (a bunch of stuff I decided to edit
> out.
>
> I had a complete neurological workup by the aforementioned
> Chief of Staff in May. He did take two plus hours but.....
> Three weeks ago I began looking for the report he wrote.
> Not in my file. Not in the Computer. I requested a copy at
> his office. The next day I received an undated, hand written
> report. Reading was going fine and it was accurate until he
> got to his impressions. The short of it was that he felt that I
> needed more rehabilitation and that (Now he hits a nerve)
> I had not reached my maximum vocational potential. aaaaah.
> I can tell you why if you'd like..later.
>
> Fast forward to this past Thursday when I had a chance encounter
> with the Chief. The initial conversation had to do with his not
> authorizing at OT evaluation at my apartment to determine if I
> could get by without the homemaker. It was taking him a long time
> to dig in the computer and he made a few under the breath comments.
> I finally said to him that as I read it when one has TM they are
> easily fatigued. He said "NO". I went on to say that TM was
> related to MS. He responded with an unequivocal "NO", they
> are not related. I shut up. I think I'll get the OT evaluation but
> his response must be handled. I reviewed Dr. Levy's article and
> his references go back to the MS article. What I need are testimonials
> that your neuro told you that MS and TM were related and that the
> fatigue factor is true. I hope that some of you may have published
> citations that I can forward to the "learned" doctor. Be sure to include
>
> the Doc's affiliations like Gunny's cousin at John's Hopkins.
>
> Just a little bit more. Jim has said he would put up the information
> related to treating physicians, etc. I am volunteering to collate this
> information and provide it to Jim to put on-line as another resource.
> I have made up a short questionnaire which I will post separately.
> Looking forward to hearing from all of you.
>
> Doc
Hi Doc,
I was diagnosed pretty quickly, although my doctor does not want to be put
on the list, (his interest is truly in fly fishing) his comment was to me,
TM is kind of like a reverse MS and yes, closely related and another doctor
who was a second opinion dr, stated the same, similarity's are closely
knitted. To take it easy because although I was a very active and athletic
person when this happened, I'd better learn to like books and quiet times,as
fatigue is definitely what I will experience. My Doctors, both neuro's are
in the Boston area, one Mass General and the other Beth Israel. The one
from Beth Israel seemed more compassionate, I don't know that he would
consider the list. I'll see.
My Best to you, Deborah