A lot of people from this list have or continue to share your frustrations.
I applaud "your ideas" on wanting to get some changes to benefit all.
Let me remind you that the writing talk shows and politicians and 'role model
celebraties" has been tossed around quite some time.
Support and info from list members is much more than I could get from my own
Drs.
I hope that the "Lions Club" philanthropy does become a part of the TMIC
someday.
Maybe you can lead the way with an idea about how to go about it.
Research leaves room for improvement,but nobody has forgotten it completely.
I think I have recovered from tm as much as anybody,but I don't give my
doctors enough credit for it. I would recommend your seeing them but I don't
think a person would gain from it. Anyway,keep the ideas and suggestions
coming.
Phil (Jim Lubin is to be applauded for providing and administrating
the list and
could use some volunteers like you)