Re: Another question for someone who has TM
Jo Ellen Finkelstein (ghellen(AT)ninenet.com)
Thu, 06 Aug 1998 17:55:59 -0500
Koliver (AT)tstar.net wrote:
>
> Paula,
> Regarding burning stinging pain is how I call it, do not let some one
> talk you into morphine, thats a bummer. I have had that pain for over 17
> years and just the last few months have I had any relief. Last Oct. I
> was referred to a pain clinic and when he could not find something to
> help he said the next step was morphine. I never went back to him or to
> the neuro that referred me. I found a new neuro who took a good hard
> look at at my meds and dicontinued several that had been piling up by
> uncaring DRs. The new neuro put me on a meaningful RX of neurontin. I
> have finally had some relief and can sleep without a lot of pain. I
> don't know about you all, but my pain has stayed with me whether my
> mobility was improved or not. My experience has been reduce the pain and
> improve the mobility. Pamelor and 2mg of valium has also helped, I take
> these at bedtime.
>
> I found my Webtv at Walmart for $99.oo and keyboard for $49.00. I don't
> know much about computers, but I am having fun with Webtv.
>
> Hang in there there are a lot of friends waiting to give support.
>
> Ken deep in the hot heart of Texas
>
> ---------------------------------------------------------------
>
> Subject: Re: Another question for someone who has TM
> Resent-Date: Thu, 6 Aug 1998 09:57:31 -0700
> Resent-From: tmic-list(AT)eskimo.com
> Date: Thu, 6 Aug 1998 09:58:07 -0700 (PDT)
> From: Lynnn(AT)webtv.net (Lynn Rose)
> To: FHargr3092(AT)aol.com
> CC: PAULAL(AT)Attachmate.com, tmic-list(AT)eskimo.com
>
> ---------------------------------------------------------------
>
> Paula ~
> I agree with Jan!!
> I am also on Neurontin for the burning sensations...and it really
> helps!!!
>
> As for the morphine.... is she taking any pain medications at all? I
> think her doctor shoud try something a little less "strong" before he
> goes to morphine!! I take Percocet or Tylox... he should try those
> first!!
>
> St. John's Wort is an excellent idea for her depression. I don't need
> it but I know of a lot of people that it has helped immensely.
> And it doesn't interfere with other meds.
>
> If your friend cannot afford a computer perhaps she could check into
> getting a Web T.V. I don't know SQUAT about computers...but I love my
> Web T.V.
> The cost is minimal ( $100. - 300.). It has a wireless keyboard.
> Oh...the cost for their monthly subscription service is $20.
> She could then become a part of this great group and receive TONS of
> support !!
> Oh...if she's interested in purchasing a webtv, have her call Montgomery
> Ward, JC Penney or if there's one in your area, Penney's Outlet Store.
>
> The best of luck to your friend.
> ~ Lynn ~
>
> ---------------------------------------------------------------
>
> Subject: Re: Another question for someone who has TM
> Resent-Date: Wed, 5 Aug 1998 12:12:14 -0700
> Resent-From: tmic-list(AT)eskimo.com
> Date: Wed, 5 Aug 1998 15:11:21 EDT
> From: FHargr3092(AT)aol.com
> To: PAULAL(AT)Attachmate.com, tmic-list(AT)eskimo.com
>
> Paula,
>
> For the burning sensation in the legs I am now
> on Neurontin which my neuro said was the least
> of the meds. I know many on here are on Baclofen
> or have a Baclofen pump. I would hope that her dr
> would try these meds before he did something more
> to her nerves.
>
> I had to self-cath in the beginning but not in last 18
> months and I don't think I could remember how to ex-
> plain or give her any help.
>
> It is too bad that she doesn't have a computer. I think
> the support of this group would help her with her depression.
> Also, my dr let me use St. John's Wort to fight the down and
> out feelings rather than another med. I think it has helped.
>
> I hope that someone here knows where she can get help in her
> area. You are special to be her friend!
> JanHHi Ken. Joellen here. when you say a meaningful dose of Neurontin what
dose do you mean? I tried neurontin but it was a low dose and didn't do
anything for me(I think my Doctor was afraid to try a higher dose) I
would do anything to get rid of this burning and pain it drives me crazy
at times and interferes with my enjoyment of what life I do have.