Paula,
Regarding burning stinging pain is how I call it, do not let some one
talk you into morphine, thats a bummer. I have had that pain for over 17
years and just the last few months have I had any relief. Last Oct. I
was referred to a pain clinic and when he could not find something to
help he said the next step was morphine. I never went back to him or to
the neuro that referred me. I found a new neuro who took a good hard
look at at my meds and dicontinued several that had been piling up by
uncaring DRs. The new neuro put me on a meaningful RX of neurontin. I
have finally had some relief and can sleep without a lot of pain. I
don't know about you all, but my pain has stayed with me whether my
mobility was improved or not. My experience has been reduce the pain and
improve the mobility. Pamelor and 2mg of valium has also helped, I take
these at bedtime.
I found my Webtv at Walmart for $99.oo and keyboard for $49.00. I don't
know much about computers, but I am having fun with Webtv.
Hang in there there are a lot of friends waiting to give support.
Ken deep in the hot heart of Texas
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From: Lynnn(AT)webtv.net (Lynn Rose)
Date: Thu, 6 Aug 1998 09:58:07 -0700 (PDT)
To: FHargr3092(AT)aol.com
Cc: PAULAL(AT)Attachmate.com, tmic-list(AT)eskimo.com
Subject: Re: Another question for someone who has TM
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Paula ~
I agree with Jan!!
I am also on Neurontin for the burning sensations...and it really
helps!!!
As for the morphine.... is she taking any pain medications at all? I
think her doctor shoud try something a little less "strong" before he
goes to morphine!! I take Percocet or Tylox... he should try those
first!!
St. John's Wort is an excellent idea for her depression. I don't need
it but I know of a lot of people that it has helped immensely.
And it doesn't interfere with other meds.
If your friend cannot afford a computer perhaps she could check into
getting a Web T.V. I don't know SQUAT about computers...but I love my
Web T.V.
The cost is minimal ( $100. - 300.). It has a wireless keyboard.
Oh...the cost for their monthly subscription service is $20.
She could then become a part of this great group and receive TONS of
support !!
Oh...if she's interested in purchasing a webtv, have her call Montgomery
Ward, JC Penney or if there's one in your area, Penney's Outlet Store.
The best of luck to your friend.
~ Lynn ~
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From: FHargr3092(AT)aol.com
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Date: Wed, 5 Aug 1998 15:11:21 EDT
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Paula,
For the burning sensation in the legs I am now
on Neurontin which my neuro said was the least
of the meds. I know many on here are on Baclofen
or have a Baclofen pump. I would hope that her dr
would try these meds before he did something more
to her nerves.
I had to self-cath in the beginning but not in last 18
months and I don't think I could remember how to ex-
plain or give her any help.
It is too bad that she doesn't have a computer. I think
the support of this group would help her with her depression.
Also, my dr let me use St. John's Wort to fight the down and
out feelings rather than another med. I think it has helped.
I hope that someone here knows where she can get help in her
area. You are special to be her friend!
JanH
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