Re: Another question for someone who has TM
Joel VL Cordeiro (jvlcjvlc(AT)juno.com)
Fri, 31 Jul 1998 02:07:29 -0700
Dear Paula,
My heart goes out to your friend.
I too have burning/freezing pain, but on the left side of my body.
It has been two years for me as well, but I have regained full use of
my body and about 90 o/o of my strength. It is very hard and you must
push yourself in order to get use of your limbs again, that's if you are
one of the lucky people who are able to regain. But I have worked very
hard to regain what have at this point.
Forget the morphine, it does not work. At least I have never heard it
working for anyone.
It does not sound like she has a Nero for a doctor. If not, she needs to
see a Nero. They are the doctors to see for TM, although there are stupid
doctors in all fields. I know, I have had one in the past. I am in
California, and I am so sorry, but I don't know of any doctors in Ill.
But there is a doctor in Detroit who is very good. Her name is Dr. Giot.
She is in charge of Nero at the Detroit Receiving Hospital. This is where
I was taken when I was hit with TM and then flown back to California. I
was on vacation when it happened to me in August of 96, but why should I
remember that date, right?!!!! HA!
Well, so far the only thing I have found to help me with the burning pain
is pot, and I don't do that much because I don't want to become a pot
head. If I have too much pain at night, I take Tylenol Pm and that helps
me, but then I have sort of a hang over the next day. Lately, I have not
had a hard time sleeping. I guess I am very lucky, because I have
regained use and am getting better every day, but it is at the slowest
rate I have ever known. My doctor told me, there is a three year window
to push and regain use of the body, so she still has time. Your friend
needs help with therapy, and she needs to really push herself. I hope
this info helps. Others here I'm sure will send info as well. There are
many wonderful supportive people here.
Best Wishes, and Good Luck to your friend. Remember she will need a good
friend after getting this crap in her life.
Joel
On Wed, 5 Aug 1998 08:51:25 -0700 Paula Lazzeri <PAULAL(AT)Attachmate.com>
writes:
>I'm writing for someone who has TM but has no computer. She has had
>TM
>for 2 years now. Her level is C6 and she uses an electric wheelchair.
>She has burning sensation in her legs especially at night. Her doctor
>is talking about giving her morphine or freezing her nerves. If
>anyone
>else has the same sensation, what do you take or do?
>
>She is currently being cathed by others. I believe she could learn to
>cath herself. Any tips for her? She and I are the same level(C6). I
>have given her my tips on cathing and thought if anyone else had any
>ideas I would pass them along.
>
>Lastly, she lives in Moline, Illinois. She is in dire need of a good
>doctor, therapist, and a friend. She is extremely depressed with no
>family support. If only she had a computer! Does anyone live in or
>near the Quad Cities? If so, any medical professional referrals and a
>possible visit to see her would be greatly appreciated.
>
>Thank you,
>Paula
>
>
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