Re: Clipping from a British Newspaper

Jane Lees (jsdj.lees(AT)zetnet.co.uk)
Sun, 2 Aug 1998 21:03:25 +0000

I think I read this article about six months ago in the Daily Mail,
it was very magazine like and not really worth looking up, although
it does provide the name of a doctor prepared to diagnose T.M. We had
no problems getting our young son diagnosed by Dr Ferrie at Leeds
General Infirmary in England, in fact he was diagnosed with it the
day he had his MRI, so maybe the person struggling to get a diagnosis
was just unlucky in their local hospital. There is nothing to stop
your G.P. from referring you somewhere outside the region. We have an
appointment to see a Spinal Injuries Consultant in another city later
this month.

Jane

> G'day folks,
>
> My grandmother sent this over to me a while ago, and the other
> night I
> bumped into someone on the chat room from England who was having
> problems getting a diagnosis. Maybe this will help someone else
> over there.
>
>
> -------Begin Newspaper Clipping -------------
>
> Dr. Paul Lyons, consultant neurologist at the Royal United Hospital,
> Bath says: Transverse Myelitis arises from an injury across the
> spinal cord. It is usually an inflammatory injury produced after
> exposure to a virus such as the one responsible for glandular fever.
> We do not know why some viruses can attack the spinal cord in this
> was, but they attack the myelin sheath surrounding the nerves
> directly, or trigger an anti-immune response which tricks the body's
> own immune system into attacking itself. It usually starts with a
> sensory disturbance in the feet and paralysis sets in over a period
> of 12-14 hours, which is very frightening. If the injury is very
> severe and near the top of the spine, the patient may need
> ventilation in order to breathe. In this situation, they can die
> without appropriate medical care. in recent years, the drug
> immuno-globulin has been administered to manipulate the immune
> system into doing what it is supposed to. Before that steroids were
> used. Apart from that physiotherapy is the main treatment.
> Fortunately about 70 pc of patients make a near full recovery.
> Around 5 to 10 pc will not recover at all. The myelin tissue around
> the nerve can be regenerated, although it is a slow process. The
> prognosis depends on the severity and site of the injury- although
> I've seen complete paraplegia make a full recovery and believe that
> willpower plays an important role in a patient's recovery. In some
> patients, the injury can occur again.
>
> -----------End Newspaper Clipping --------------
>
> Unfortunately my grandmother forgot to tell me which paper she
> reads. Maybe the doctors name will help others in England, although
> the rest of the information is pretty much basic knowledge to those
> of us who have the disease.
>
> Calishar
>
> P.S. I'm not suffering from the disease, I have survived it
>
>