Judi,
The general principle is that they are used to shut down the immune
system so the antiinflammatory medications (steroids) can do their job,
healing can take place, and the steroids can be weaned. Every time I hit
a certain dose of steroids (going down) my function worsens.Poor
strength, increase spasm and dyscoordination. It improves dramatically
on higher dose steroids, and improved much on the cytoxin. It just got
that the cure was worse than the disease. The key was, I still had
inflammation smoldering-that difference between myel-itis and -opathy.
Let me know what happens!
Sam
Johnnie DeGrand wrote:
> Sam, can you tell me more about cytoixin and IVIG and what and why
> they were used on you. So that I may ask Jake Doc's about the
> possibility of getting them. Am to understand that they were tried for
> gaining function? Judi
>
> ----------
> > From: Sandra Melville <luthyen(AT)erols.com>
> > To: tmic-list(AT)eskimo.com
> > Subject: I only do rare..
> > Date: Monday, July 20, 1998 9:21 AM
> >
> > Hello everybody!
> >
> > I have not fallen the end of the earth, although I have been lurking
> a bit.
> > Actually I have spent six of the last eight weeks in the hospital.
> Six of
> > them were with a rare auto immune ( does this sound familiar)
> disorder
> > called sympathotonic orthostatic hypotension, which means my blood
> pressure
> > went so low that I could not sit up let alone stand or walk. While
> I was
> > being worked out for that, it was found that I had a C3-C4
> subluxation, so I
> > had a fusion with a titanium plate and screws. Now I am languishing
> at home
> > in a Philadelphia collar and recovering in the little decrease in
> function
> > that happened postop. The low blood pressure seemed to have been
> triggered
> > by my fourth and rounds of cytoxin, so there will be no more of
> that. A
> > mixed blessing, because it really had helped my function. For those
> of you
> > can sit considering cytoxin, don't let this scare you off: as far as
> I know,
> > it's never been reported before. The cytoxin did make great
> improvement in
> > my function, and I would do it again, it were not for this. Now it
> looks as
> > if we're considering IVIG: I'll know more after the doctors
> appointment this
> > afternoon.
> >
> > Keep smiling all!
> >
> > Sam
> >
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Judi,
Let me know what happens!
Sam
Johnnie DeGrand wrote:
Sam, can you tell me more about cytoixin and IVIG and what and why they were used on you. So that I may ask Jake Doc's about the possibility of getting them. Am to understand that they were tried for gaining function? Judi----------
> From: Sandra Melville <luthyen(AT)erols.com>
> To: tmic-list(AT)eskimo.com
> Subject: I only do rare..
> Date: Monday, July 20, 1998 9:21 AM
>
> Hello everybody!
>
> I have not fallen the end of the earth, although I have been lurking a bit.
> Actually I have spent six of the last eight weeks in the hospital. Six of
> them were with a rare auto immune ( does this sound familiar) disorder
> called sympathotonic orthostatic hypotension, which means my blood pressure
> went so low that I could not sit up let alone stand or walk. While I was
> being worked out for that, it was found that I had a C3-C4 subluxation, so I
> had a fusion with a titanium plate and screws. Now I am languishing at home
> in a Philadelphia collar and recovering in the little decrease in function
> that happened postop. The low blood pressure seemed to have been triggered
> by my fourth and rounds of cytoxin, so there will be no more of that. A
> mixed blessing, because it really had helped my function. For those of you
> can sit considering cytoxin, don't let this scare you off: as far as I know,
> it's never been reported before. The cytoxin did make great improvement in
> my function, and I would do it again, it were not for this. Now it looks as
> if we're considering IVIG: I'll know more after the doctors appointment this
> afternoon.
>
> Keep smiling all!
>
> Sam
>
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