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Sam, can you tell me more about cytoixin and IVIG and what and why they
were used on you. So that I may ask Jake Doc's about the possibility of
getting them. Am to understand that they were tried for gaining function?
Judi
----------
> From: Sandra Melville <luthyen(AT)erols.com>
> To: tmic-list(AT)eskimo.com
> Subject: I only do rare..
> Date: Monday, July 20, 1998 9:21 AM
>
> Hello everybody!
>
> I have not fallen the end of the earth, although I have been lurking a
bit.
> Actually I have spent six of the last eight weeks in the hospital. Six
of
> them were with a rare auto immune ( does this sound familiar) disorder
> called sympathotonic orthostatic hypotension, which means my blood
pressure
> went so low that I could not sit up let alone stand or walk. While I was
> being worked out for that, it was found that I had a C3-C4 subluxation,
so I
> had a fusion with a titanium plate and screws. Now I am languishing at
home
> in a Philadelphia collar and recovering in the little decrease in
function
> that happened postop. The low blood pressure seemed to have been
triggered
> by my fourth and rounds of cytoxin, so there will be no more of that. A
> mixed blessing, because it really had helped my function. For those of
you
> can sit considering cytoxin, don't let this scare you off: as far as I
know,
> it's never been reported before. The cytoxin did make great improvement
in
> my function, and I would do it again, it were not for this. Now it looks
as
> if we're considering IVIG: I'll know more after the doctors appointment
this
> afternoon.
>
> Keep smiling all!
>
> Sam
>
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Sam, can you tell me more about =
cytoixin and IVIG and what and why they were used on you. So that I may =
ask Jake Doc's about the possibility of getting them. Am to understand =
that they were tried for gaining function? =
Judi
----------
> From: Sandra Melville <luthyen(AT)erols.com>
> To: tmic-list(AT)eskimo.com
> Subject: I only do rare..
> Date: =
Monday, July 20, 1998 9:21 AM
>
> Hello everybody!
> =
> I have not fallen the end of the earth, although I have been =
lurking a bit.
> Actually I have spent six of the last eight weeks =
in the hospital. Six of
> them were with a rare auto immune =
( does this sound familiar) disorder
> called sympathotonic =
orthostatic hypotension, which means my blood pressure
> went so =
low that I could not sit up let alone stand or walk. While I =
was
> being worked out for that, it was found that I had a C3-C4 =
subluxation, so I
> had a fusion with a titanium plate and screws. =
Now I am languishing at home
> in a Philadelphia collar and =
recovering in the little decrease in function
> that happened =
postop. The low blood pressure seemed to have been =
triggered
> by my fourth and rounds of cytoxin, so there will be =
no more of that. A
> mixed blessing, because it really had =
helped my function. For those of you
> can sit considering =
cytoxin, don't let this scare you off: as far as I know,
> it's =
never been reported before. The cytoxin did make great improvement =
in
> my function, and I would do it again, it were not for this. =
Now it looks as
> if we're considering IVIG: I'll know more =
after the doctors appointment this
> afternoon.
>
> =
Keep smiling all!
>
> Sam
>