New member.....I.V.I.G
karen and phil (plgarner(AT)bayou.com)
Mon, 20 Jul 1998 04:44:43 -0500
My name is Karen and my daughter was diagnosed with TM September
24,1997....she was only 4 months old.
Once they figured out what was wrong with her (after xrays,ultra sounds,
blood tests, spinal tap, MRI) she was transferred to an intensive care
unit where they put her on a ventilator and immediately began her on
prednisone. The MRI showed signs of inflamation at C5 and C6 the
doctors were concerned that it may move up to the brain stem.
Day 2 she was still on a vent. ... the doctor doubled the dose of
prednisone...and began I.V.I.G (immunoglobins).
Day 3..by that evening my baby was off the ventilator and moving her
arms!
The doctors dont know what did the trick....larger doses of prednisone
or IVIG.
Our stay in the hospital was a total of 10 days. She did have to remain
on steriods of a while (prelone) My peditrician and neurologist were in
disagreement about how long she should stay on the steriods. Anyway we
finished up the treatment of steriods by Thanksgiving. (about 8 wks)
Today she is 14 months old....she receiving physical therapy 2 times a
week.....she crawls all over the place....pulls up....and is beginning
to stand on her on. We are hopefull that she will be walking by
Christmas.
Earlier this month she was bit by ants on her legs but never cried or
seemed to have any pain. I told my ped. doc. and he is going to set up
an E M G.....Have any of u ever had this done?
Our doctors said that IVIG isnt usuallly used to treat TM but they gave
it a try anyway.
IVIG they say is usually used to treat Gillian Barre Syn.
Some days my daughter is fussier than usual....do u think she could
possibly be having some kind of discomfort...she is not old enough to
tell me yet.?
She is an identical twin!
Thanks,
Karen and Bridget(my daughter)